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  1. TigerLilea

    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    This poll doesn't make sense to me. We have long-term symptom exacerbation. That is what ME is.
  2. TigerLilea

    Is tinnitus an ME symptom? - Discussion of evidence

    Over the years of belonging to various ME/CFS groups, I have seen too many people attributing any new medical symptoms to ME. Anytime someone has a new symptom they should get it checked out by their GP as chances are it has nothing to do with ME.
  3. TigerLilea

    Is tinnitus an ME symptom? - Discussion of evidence

    I have tinnitus, however, I don't think it has anything to do with ME. I definitely think that my love of loud music is the cause. The covid vaccine turned it from a soft humming sound to a loud screeching noise.
  4. TigerLilea

    Tinnitus treatment and management

    The covid vaccines are known for causing sudden tinnitus. According to the World Health Organization the Pfizer vaccine has been found to be responsible in 80% of the people reporting vaccine induced tinnitus.
  5. TigerLilea

    Trading Lifespan For Health

    I wouldn't. As bad as my health is I still want to live to see 100 candles on my birthday cake.
  6. TigerLilea

    Aphaeresis/ Apheresis (for removal of microclots)

    My hematologist said pretty much the same thing when I talked to her last month.
  7. TigerLilea

    Self-reported Tinnitus and Vertigo or Dizziness in a Cohort of Adult Long COVID Patients, 2022, Degen et al

    Tinnitus, vertigo, and dizziness are also commonly reported adverse reactions to the covid vaccines. I am one of those people. :(
  8. TigerLilea

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Hopefully those people are in the minority though.
  9. TigerLilea

    Covid-19 vaccination experiences

    I jumped on Pfizer for my 3rd shot and I'm paying for it now. I have developed vertigo with this vaccine and the neuropathy is much worse than what I experienced with Moderna. My fatigue has gone from being exhausted all of the time to I could sleep all of the time. :emoji_sleeping: I'm done...
  10. TigerLilea

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    Yes!! It's about time that we were heard and taken seriously in the UK by the medical profession and the medical researchers. Hopefully this will continue with the UK media. This gives me great hope that finally things will start to change for us in a positive way.
  11. TigerLilea

    UK Parliament: ME/CFS Announcements: Statement by Health Secretary Sajid Javid, 12 May 2022

    I'm not a Times' subscriber, however, I was able to read the article in full that Andy posted a link for.
  12. TigerLilea

    "You'll have to come in to the surgery for that"

    In BC where I am from, pre-covid, the gov't would only pay doctors for in office visits. Therefore doctors stopped phoning patients with test results and no longer did prescription repeats over the phone. And it sounds like the gov't intends on heading back in that direction once covid is no...
  13. TigerLilea

    "You'll have to come in to the surgery for that"

    Here we have to phone to book a phone appointment and we are given a time, just like you would get with an in office appointment.
  14. TigerLilea

    "You'll have to come in to the surgery for that"

    Until covid happened, here in BC where I live all appointments had to be in office. They did not offer phone or video appointments, email was never an option and it's been decades since doctors did home visits. Either you come into the office or go to the ER. I'm hoping that now that we have the...
  15. TigerLilea

    Dr Alain Moreau video - developing new test to discriminate between ME & Fibro

    I get muscle pain with ME when I am actually physically doing something (ie walking up stairs, shampooing my hair, brushing my teeth), however, the pain goes away as soon as I stop whatever it is that I am doing.
  16. TigerLilea

    “Unstoppable” documentary

    I doubt very much that she ever had ME. Her fatigue started after having two kids and according to the video, she was "burnt out". She now calls herself a "Mindset and Empowerment Coach". :banghead::banghead::banghead::banghead::banghead:
  17. TigerLilea

    New book: 'Breaking Free' (PASC: ME and Covid-19)

    What a load of sh*t!! If that is all that it took to recover, none of us would still have ME. We would have been cured years, if not decades, ago.
  18. TigerLilea

    Shilajit

    I don't trust any information coming from Healthline.
  19. TigerLilea

    Magnesium

    I also sleep really well when I'm taking magnesium supplements. I get to sleep within about 15 minutes and if I wake up during the night I get back to sleep within 10 minutes. The only problem is that after a few weeks of taking magnesium every night I can't stay awake during the day. I can't...
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