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  1. TigerLilea

    Feeling like I'm starving, or continuing to feel hungry despite a full stomach

    I've found for myself if I don't eat meat often, my sleep is awful. I tried doing a more plant based diet along with salmon some days, and I found after three days without meat I don't sleep well. It makes me wonder what is it about meat that helps with sleep. I've heard of a few vegan...
  2. TigerLilea

    Covid-19 vaccines and vaccinations

    Thanks, Trish! From talking with people in the US who have seen neurologists, they are being told that adverse reactions to vaccines usually clear up anywhere from 6 months to 2 years. I'm still hopeful that at some point things will get better. One person was told by their neurologist that he...
  3. TigerLilea

    Covid-19 vaccines and vaccinations

    I read something a few weeks ago that no one knows at what point we 'over' vaccinate and start causing damage to the immune system. This doctor was saying we can't continually keep vaccinating people against covid, at least not as often as we are at the moment.
  4. TigerLilea

    Covid-19 vaccines and vaccinations

    Unfortunately, I'm worse now than I was before. It's affecting my eyes and my hearing at the moment. :(
  5. TigerLilea

    Covid-19 vaccines and vaccinations

    I got the call for my fourth shot last week but I also declined it. I'm would never have a mRNA vaccine again.
  6. TigerLilea

    Would you agree that acceptance leads to being able to achieve more?

    I think if you can accept your illness and it's limitations, it can put you in a better place mentally, but I don't know that you will necessarily be able to achieve more. That would all depend on how severe your illness is.
  7. TigerLilea

    High-dose Oral Thiamine Vs Placebo for Chronic Fatigue in Patients With Quiescent Inflammatory Bowel Disease, 2021, Bager et al

    The people who are taking therapeutic doses of B1 aren't trying to fix a deficiency. It has something to do with "a dysfunction of the intracellular transport or due to enzymatic abnormalities, and responds favourably to high doses of thiamine". Some research has found that large doses of B1 can...
  8. TigerLilea

    High-dose Oral Thiamine Vs Placebo for Chronic Fatigue in Patients With Quiescent Inflammatory Bowel Disease, 2021, Bager et al

    I am starting to take high B1 (Thiamine) today to see if it will help with the adverse reactions from the covid vaccines. Some people have found that the B1 has helped with the burning pain from vaccine induced neuropathy. I read yesterday that some people with MS have found that B1 helped with...
  9. TigerLilea

    5HT tests for CFS

    Isn't this test used for testing for Carcinoid tumours?
  10. TigerLilea

    'Disability as identity' - discussion thread

    At least he got the description of himself right.
  11. TigerLilea

    Justin Bieber dx with Ramsay Hunts Syndrome

    I had that and it was caused by Laryngopharyngeal Reflux (also known as Silent Reflux).
  12. TigerLilea

    Justin Bieber dx with Ramsay Hunts Syndrome

    That was two and a half years ago that he had Lyme Disease. He is just announcing today that he has been diagnosed with Ramsay Hunts Syndrome.
  13. TigerLilea

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    I had surgery two years ago and they had me have a drink of water before I left for the hospital and they gave me a drink of water about 15 minutes before the surgery. Current thinking is that patients have better surgical outcomes when hydrated.
  14. TigerLilea

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    Would this not show up on blood work in a lab? I can't count the number of blood tests I've had done over the past four years and surely this would have shown up in at least one of the tests as my blood has been very well tested for many things.
  15. TigerLilea

    News from Canada

    Canada isn't tracking adverse reactions to the covid vaccines either.
  16. TigerLilea

    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    @DigitalDrifter I'm sorry to hear that you were put through this. This certainly hasn't been my experience with dealing with doctors here in BC. I've only ever encountered two doctors that claimed that ME was either psychological or depression and both of those doctors were British trained...
  17. TigerLilea

    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    I never said anything about "damage from exercise that last months or years". My ME did not start from exercise. Mine started after taking antibiotics for a tooth infection (a tooth infection that resulted in me having a cold for six months before the cause of the long term cold was discovered).
  18. TigerLilea

    LTSE - Long Term Symptom Exacerbation - Type 2 ME or New Diagnosis?

    We are bundled into one label because medical science hasn't yet figured out what ME is or how to treat or cure it. It's already confusing enough having different names for the same condition without adding more names or sub-categories.
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