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I wouldn't mention that you have ME/CFS. I made that mistake and the appointment ended very quickly after that. It didn't matter what I said, the neurologist just kept repeating that I was depressed and 'of course you feel pain when you're depressed'. An ENT later diagnosed the pain I was having...

Did they not show the actual test result along with the ref ranges?

I'm actually not surprised by the outcome. I had read that at least some of the responders got worse again once they stopped taking Rituximab.

I totally forgot about exercise when I was listing different sources.

Antibiotics can cause permanent damage.

Gut bacteria has many more sources than food alone. You take in bacteria through breathing, your skin, and through your mouth. Gardening is a great way to get good bacteria. And then you have antibiotics that are notorious for wiping out good bacteria. In some cases there will be enough left for...

Not necessarily. It's possible that a particular bacteria(s) got completely wiped out or a bad bacteria became over populated that has nothing to do with the food you eat.

It takes me an hour or two in the morning to get going. Then I'm good until around 3 pm and then I start running out of steam for the day.

I was thinking about this after I voted last night and I wonder, too, how much my aging is a factor in how I feel these days. Menopause for me was definitely life changing so it's hard to say how much of my fatigue today is ME related and how much is just a normal part of aging.

I voted 'relapsing-remitting' but I don't know how much of that is related to my allergies and sinus issues. But then again there is a good chance that they are related to my ME anyways.

Amitriptyline is one of those antidepressants. I know three people who are using it for pain and to help with their sleep.

A family across the street from me when I was growing up had mono and the two eldest girls were off of school for six months.

That was the advice that my doctor gave me and after four months my ME was much worse. :(

I read that an ME patient needs total rest for two weeks before the CPET testing in order to get accurate results. Otherwise the second day's results wouldn't look much different from the first day's results.

It all depends on the person and how severe their ME is. I don't think that I would have a problem doing it, but it really depends on how physically active you are. For someone pretty much bedridden I would expect them to have a severe reaction to the testing, but for someone like me who can do...

We could wait forever though for that. I've waited 27 years already.

I wondered the same thing. Ken Lassesen (CFS Remission) recommends Mutaflor and Symbioflor-2 which are both E. coli Nissle probiotics.

My opinion is that this type of therapy falls under 'junk science'. You might want to consider finding a new doctor - one who takes ME seriously.

That was one of the allergy tests that I had done also.

@adreno How long have you been using Mutaflor for and do you take breaks from it the way that Ken Lassesen suggests?