Search results

But as someone else mentioned earlier, AfME board members could just as easily sign up as Joe Smith or Jane Doe and we'd be none the wiser. If they want to read what is being posted here, there is no way to stop them. At least they are being transparent about joining this group.

I don't understand your POV. Isn't it better that AfME belong to a group that is following the research so that they can be educated and have the latest up-to-date information? Isn't it better that they understand ME patient's frustrations with the current medical system in the UK in regard to...

I thought it was very odd also. He was an older doctor and must have been very close to retiring, so maybe this wasn't something he was taught in medical school.

How was your sinus culture done? When I asked about getting a culture done, my ENT told me it would have to be done under anesthesia in the operating room. I never get the impression that this is how other ENTs do their cultures.

I used the Bactoferm which has the L Sakei bacteria, however, I didn't get any improvement at all. :(:sick:

When I used the nasal spray (Flonase) on a regular basis I got the absolute headache from hell. It made my sinus headache a walk in the park.

Unfortunately, I have lived with Chronic Sinusitis for the past 26 years. Ninety percent of sinusitis is not bacterial and antibiotics won't work. The best way to determine if you need antibiotics is by your sleep. If you are sleeping around the clock and just can't stay awake during the day...

PEM doesn't affect the numbers of hours I sleep, however, I do find that when my PEM is at its worst, it takes me much longer to fall asleep at night.

If I sleep for 10 or more hours I feel awful for the rest of the day. Usually the only time I sleep that long is when I'm sick with something like chronic sinusitis or a cold.

I generally do well with 7 to 9 hours each night. Any less than 5 or 6 hours and I'm cranky the next day. :asleep:

I'm not sure how old you are, Sasha, but if you are in peri or meno, then a steady temperature is a thing of the past. :(

Sorry, Mij, I misunderstood you. I thought you were implying that GPs in Canada shouldn't be diagnosing ME. Epidemic isn't the right word to describe ME, however, I think he got his point across that there are lot of us living here in Canada who suffer with this illness. I don't think he was...

I'm not from Atlantic Canada so maybe doctors are a little more knowledgeable in the big cities in the larger provinces. So do you suggest we don't get a diagnosis at all? There are very few doctors in any country who are truly knowledgeable about ME. Considering that medical science has not...

GPs can diagnose ME.

I've heard this before, also. However, I didn't have any of the problems that they list. I went through meno at 52 which is the average age.

It's very common for women going through perimenopause to get this.

Extreme exhaustion Can't think

I'll add the Vitamin C to my list of things to try. I've read several times that what some doctors diagnose as acid reflux is actually not enough stomach acid for the stomach to do it's thing.

I have suffered with Chronic Sinusitis for many years and I'm wondering now if possibly I have LPR which is causing my symptoms. Several people over the past year have asked me about having acid reflux and I didn't think that I had it because I never get heartburn. However, since researching the...

I have not noticed any improvement what-so-ever using the Bactoferm. If anything, my Chronic Sinusitis is worse now than before I started using it. :(