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  1. TigerLilea

    Menopause and ME - what's your experience?

    @Kalliope When you say 'menopause' are you specifically talking about the time when a woman no longer has any periods, or are you referring to 'perimenopause', the period of time leading up to menopause? Menopause is the stretch of time from your very last period until you die.
  2. TigerLilea

    Menopause and ME - what's your experience?

    I didn't notice any difference to my ME once I settled into meno. There is no 'usual' time for entering meno. The average age is 52, however, for lots of women it can be in their 40s. I know some women who are almost 60 and are still waiting.
  3. TigerLilea

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Didn't Ron Davis say that his goal was to have every doctor have a nanoneedle in their office so that they could do testing right away?
  4. TigerLilea

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    I think this is a ways off yet. It's too soon to be getting excited about it.
  5. TigerLilea

    Orthostatic intolerance

    When I had the test done I had to stand for 30 minutes.
  6. TigerLilea

    Peace Arch News: White Rock woman shares her struggle with "horrendous" fatigue

    White Rock is in my part of the world. For the most part, when there are media reports about ME/CFS in Canada, they tend to be positive stories such as this one. Not the negative blame the patient, wrong thinking, deconditioned, blah blah blah, type stories that come out of the UK.
  7. TigerLilea

    How many of you have cats and how many have been tested for cat scratch disease?

    Toxoplasmosis and Cat Scratch Fever are two different things.
  8. TigerLilea

    How many of you have cats and how many have been tested for cat scratch disease?

    I've had cats pretty much all of my life and I've never had cat-scratch disease. And Lord knows I've been scratched many many times over the years.
  9. TigerLilea

    Fludrocortisone

    I'm not bed bound but I did try using it many years ago to see if it would make any difference to my ME/CFS symptoms. Unfortunately, other than cost me money it didn't do anything noticeable.
  10. TigerLilea

    Suddenly my head spins

    An inner ear infection?
  11. TigerLilea

    Fecal transplants in ME/CFS

    I'm curious as to how you know that 'low quality donors' are being used??
  12. TigerLilea

    Anyone with ankylosing spondylytis ?

    @Dechi Could you possibly need a new mattress for your bed? I started getting hip pain while sleeping which turned out to be a mattress issue. Since I bought my new mattress I haven't had this problem anymore.
  13. TigerLilea

    Does anyone here get worse in relation to stress?

    My main symptom of ME/CFS is fatigue in the form of extreme exhaustion. It has been like this from day one. It most definitely is not 'relatively minor'.
  14. TigerLilea

    ME from stress ?

    My ME/CFS started three days after taking oral penicillin for two badly infected teeth.
  15. TigerLilea

    Complement levels - C3 and C4

    I was tested in January and they were 'normal'.
  16. TigerLilea

    A Validated Scale for Assessing the Severity of Acute Infectious Mononucleosis, 2019, Jason et al

    I'm the only person I know that had mono who later went on to develop ME/CFS. And that was 14 years later.
  17. TigerLilea

    Is there a connection between ME/CFS and Sjogren's Syndrome? Discussion and a poll about testing

    I'm curious to know how many other people with ME/CFS have tested positive for Sjogren's syndrome. I was recently tested and came up positive for SS-A, however, I don't have the classic symptoms (dry eyes and dry mouth). I haven't seen the Rheumatologist yet, but according to my Internist...
  18. TigerLilea

    Hypothesis piece by Amy Proal, a microbiologist with ME/CFS

    I have tried the B12 injections and d-ribose. As far as prescription drugs I have not yet met a doctor who will prescribe random drugs simply because I have ME/CFS. Neither would I be willing to try them without proof that they work for our condition. Many years ago before ME/CFS, I was put on...
  19. TigerLilea

    Making payments into your UK State Pension to ensure you get a pension

    It makes me wonder if this is something that I can do here in Canada. I'll have to check into it.
  20. TigerLilea

    Do you get post-exertional malaise from being outdoors?

    No. Being physically active for too long causes my PEM. Indoors or outside. Any time of the year.
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