Search results

My understanding is that everyone who participates in this research are given a glucose monitor so that they can monitor how different foods affects their blood sugar levels. I would love to participate in this, however, it's not available to Canadians.

There was a doctor in Alberta, Canada, working on ME research several years ago who said that one of the biggest problems with doctors diagnosing someone with fatigue was the fact that they couldn't distinguish between the different types of fatigue. I'm editing my message as I realized that I...

Fatigue is 90% of my ME. Always has been.

@Binkie4 I've noticed since having the last two vaccines that I have much more pain than I used to in the past. Like you, I'm hoping that this is a temporary situation and eventually resolves on it's own. That's great that your doctors are admitting that the vaccines can be the culprit. There...

I'm finally, after two long years, starting to feel like I am recovering from the vaccines. The fatigue is still worse than it was pre-vaccine, however, I am able to do much more during the day and the PEM has gone back to what is normal for me. I still have the neuropathy but it also isn't as...

https://news.sky.com/story/new-long-covid-drug-may-significantly-reduce-fatigue-in-patients-12856906?fbclid=IwAR3rB5yBnbt_zT_3znIhoXZPA5Wzb0vrAuZKhUdjgBcDluz6t_16lA6A0-Q

Or it could be that the virus itself has affected the gut bacteria. That to me is very plausible.

A 14 year old teen in Japan died 45 hours after having her third Pfizer vaccine. Two thousand deaths have been reported in Japan from the covid vaccines.

For me, it has always been about "extreme exhaustion". That has always been my main symptom since coming down with ME back in 1991. I'm not tired. I'm not sleepy. I don't have any desire to go back to bed and spend the day laying down. I am absolutely exhausted from the time I get up in the...

My ferritin levels were always between 27 to 32 until menopause when they went up to 134. Since being diagnosed with MGUS and Sjogren's just over four years ago they have been consistently going down. When they were checked two years ago they were down to 56 and on Monday I get the results from...

We aren't allowed to wear those in the hospitals here in BC. They have to be the blue surgical masks. They made me toss my N95 at the door and handed me one of their masks to wear. :(

I'm definitely done with vaccines. All vaccines! I've lost the last two years of my life to adverse reactions to the covid vaccines and after having the flu vaccine in December, I'm heading towards being bed bound if things continue as they have the past month.

Hopefully when medical science finally figures out exactly what ME/CFS actually is, the new name will reflect what the problem is and everyone will be in agreement.

Yes, they are great! I bought a roller blackout blind years ago and it made a huge difference to my sleep, especially in the summer. They also keep the bedroom warmer during the cold winter months.

Isn't EBV the HSV-4 virus? not HSV-1?

There have been a few nurses here in Canada who have been discovered to have been working for years in Canadian hospitals without being licensed to practice medicine. The one woman was using another nurses name and credentials.

:hug:

I can't have any more vaccines either. Before the covid vaccines I'd never ever had a problem with vaccines.

Ken Lassesen (CFS Remission.com) used to recommend Butyrate supplements. I never tried them at the time as it was in the days before Amazon and the only place you could order them was from a company in Japan. Ken has been able to put himself into remission a few times by doing a regimen of...

As the flu and colds were greatly decreased over the past two years, wouldn't that indicate that masks do protect us from viruses?