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  1. Barry

    Claire Fox (Fiona's sister)

    Steve Hawkins comment (in this Virology blog by Steven Lubet), http://www.virology.ws/2017/07/03/trial-by-error-guest-post-questions-about-professor-sharpes-special-ethics-seminar/comment-page-1/ also discusses the Foxes:
  2. Barry

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I agree in principle, but not sure what their legal situation would be. May be fine, I simply don't know.
  3. Barry

    United Kingdom: reMEmber news

    "There will be two expert presenters at the conference, Dr Charles Shepherd and Nina Muirhead who is a surgeon." Those two names definitely sound encouraging.
  4. Barry

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Agreed, clearly. But it's just interesting, and no harm done?
  5. Barry

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    No can't do. Currently $75,404, and was definitely well over $70,404 without any match.
  6. Barry

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Already had a couple of goes. I wonder if anyone else might be doing a matching offer?
  7. Barry

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Thank you :rolleyes: ... I tend to be a bit rushed at lunch times.
  8. Barry

    A general thread on the PACE trial!

    I was really pondering the fact that somewhere a good while back now, either in this forum or PR, it was commented (possibly by @Jonathan Edwards), that a major TV documentary had been planned (or maybe ran), and been slammed hard by the BPS establishment, likely via the old-boys' network, and...
  9. Barry

    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    Do we have a figure for what the total was just before the matching grant was announced, so we can see if the $5K is anywhere near?
  10. Barry

    A general thread on the PACE trial!

    It is also interesting that a journalist who presumably felt the need to go quiet on this issue back in 2016, now feels the time is right to speak out again.
  11. Barry

    A general thread on the PACE trial!

    Jerome Burne frames this in the context of NICE withdrawing their recommendations for CBT and GET for ME/CFS, and all those pwME and families that would then show to have been potentially maltreated. But I suspect there could also be a legal issue if NICE flagrantly ignored ever increasing...
  12. Barry

    Oxford criteria

    My feeling is that that it is all they've got, quite literally. I think psychiatry is all about grey areas, intangibles. It's as if psychiatry has evolved its own research practices, independently of mainstream science, but they call it science anyway ... but in many ways more akin to religion...
  13. Barry

    Oxford criteria

    Mainly, it would seem, because of a profound lack of understanding of intellectual rigour
  14. Barry

    medical professionals, psychologists, and researchers

    I don't think we are. It's about medical professionals, all of them. And they should be professional.
  15. Barry

    Video, Emerge Symposium 2019: Dr Neil McGregor, An Omic Analysis of ME/CFS – an Assessment of Potential Mechanisms

    Does anybody know exactly what it is yet? I thought that was the point - still searching to discover exactly what it is.
  16. Barry

    Video, Emerge Symposium 2019: Dr Neil McGregor, An Omic Analysis of ME/CFS – an Assessment of Potential Mechanisms

    There is a lot of biomedical research underway lately, showing clear physiological changes in pwME compared to healthy controls. Is it possible to also show that these physiological changes differ significantly from people who are solely deconditioned? Because it seems this could be a key...
  17. Barry

    medical professionals, psychologists, and researchers

    Well done :). Feels like this is one of many educational resources we should try to get representation in.
  18. Barry

    medical professionals, psychologists, and researchers

    Which again brings home the reality that ME is only really understood by people who live with it in some way and also are open minded enough to not prejudge. It's the day-in-day-out familiarisation of having, or living with, a pwME that really helps you see the truth behind the symptoms. In all...
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