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  1. Forbin

    ‘Healthy Privilege’ – when you just can’t imagine being sick

    One thing that must be remembered is that a lay person's perception of ME/CFS is almost certainly based on what little information they have been exposed to through "expert" and government sources for the last 30 odd years. That is to say, they think it is "all in the head," depression, "false...
  2. Forbin

    Esther Crawley gets 'commendation' at 2017 Maddox Prize awards.

    Maybe there should be a prize for digging the deepest hole. Or at least a music video... [ Pretty great little animation. Turn on CC for lyrics. ]
  3. Forbin

    From Theater to Science: A ’Medical Detective’ Describes His Journey with Dr. W. Ian Lipkin | White House Chronicle 9046

    You can donate to Columbia/Mailman's ME/CFS research here: https://www.givenow.columbia.edu/?_sd=588&_sa=21677# It may take moment, but, after the page loads, scroll down and it should quickly and automatically display the specific fund - namely:
  4. Forbin

    Daily Mirror article: "My body shut down" - Woman reveals her heartbreaking battle with Chronic Fatigue Syndrome

    I'd never heard of "iridology" before. Apparently, it's like phrenology, only for the iris. :rolleyes: https://en.wikipedia.org/wiki/Iridology It seems like her onset dates to a virus in 2001, but she doesn't say exactly when she started to improve. The problem is that some people do seem to...
  5. Forbin

    NYT A Failure to Heal / What happens when a clinical trial fails?

    I was just wondering what the interpretation would be in a trial where the treatment group is unchanged but the placebo group shows a lot of improvement. Admittedly, this would seem like a rare event, but I imagine it must happen at times. I suppose it might just be written off as a chance...
  6. Forbin

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Actually, I didn't mean challenging in the sense that he asked a tough question, I meant that he asked a questioned which literally challenged her (dared her) to explain her claim of libel.
  7. Forbin

    Esther Crawley talk at TEDxBristol, Thurs 2nd Bristol - "Disrupting Your View Of ME"

    Curious, isn't it, that someone who gives a speech on the theme "Dare to Disrupt" would, at a subsequent presentation, stand by as a journalist was asked to leave for daring to ask a challenging question?
  8. Forbin

    Weird symptom..."Afterimage"?

    I've noticed this at times when I've gone without sleep for several hours longer than usual. Light sensitivity is also worse at such times. I kind of assume this is normal, except there are times when it is more pronounced - probably when I haven't had enough sleep for several nights in a row.
  9. Forbin

    Seeing a neurologist - any tips?

    If your onset was infectious, or post-infectious, and was relatively recent (like a month or so ago), they might want to do a spinal tap to rule out any recent cerebrospinal infection. I had one done about a month after onset, and though it showed no pathogens, the protein level was mildly...
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