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There's a difference between being "on track" (which is the headline of the poll) and being "on the right track," which is the actual poll question. They are definitely on some kind of track, which is an improvement from 30 years of not being on any kind of track (the CDC's earlier studies were...

Sort of a recurring theme of Dr. Nahle's interview is that the Solve ME/CFS Initiative is funding some research. He points out that Nancy Klimas' first ME/CFS grant came from The CFIDS Association of America (CAA), the precursor to SMCI. Later he mentions that SMCI has taken a decision to...

When I was a teenager, several years before I became ill, a "friend" of mine had a party at their house where they laid out some food, including a platter of "taco chips." It was my good luck to be the first (and only) person to eat some. It turns out my friend, conspiring with his mother, had...

I'm not sure. Telomeres shorten when cells divide, so it could be argued that older cells, those that have gone through fewer cell divisions, would have longer telomeres (cerebral neurons, for instance, are never replaced). On the other hand, telomere length can reconstitute, so it seems like...

From the "Conclusions" section of the paper...

I thought this passage from the "telomere" wikipedia page was interesting in that it mentions hibernation and C. elegans. The bolding below is mine. Given all that, you might think that telomeres should be lengthening, not shortening, in ME/CFS patients. Mady Hornig's work at Columbia...

This may be so obvious that no one has bothered to mention it, but... If the problem is overheating after you've been in bed for a while, one way to regulate this is to... get one or both feet out from under the covers. Like your head, your feet dissipate a lot of heat, so you'll cool down and...

In Osler's Web, Dr. David Bell is described as having noticed that his patients, and the patients of other ME doctors, had a "numb" and unchanging set of facial features that was characteristic of them. He called their faces "bland" and "lacking the vitality of expression." Called "myopathic...

I have no issue with this 11/04/15 Charlie Rose interview of Francis Collins except that, as is his style, Charlie Rose interrupts his guest just when they are about to say something interesting. In this case, he cuts off Collins just before he can utter the word "flu" or "infection." Yes...

The odd thing is the people who tell me this most often are doctors and nurses. I had this happen about two weeks ago when a nurse I'd never seen before looked at me strange and then had me verify my name and my age, at which points she said "Wow, you sure don't look your age." I even had an...

To express the same sentiment, I often go with "they're writing checks that they can't cash." :)

If there is a structural change after onset, I wonder if it could possibly be related to the pattern of headaches seen in ME/CFS. Virtually all of the case definitions mention headache, with both the CCC and the CDC's Fukuda definition using this language: I certainly developed headaches of a...

Do we know that this is actually caused by the disease, though? Could it instead be a predisposition?

It looks like by "stop the flu in one day" they mean that an infected person will stop shedding the virus in one day. So, it cuts the usual duration of flu symptoms by about 1/3. It seems like it might cut the duration of symptoms to a single day if you could somehow take it as soon as you...

There probably is a lot of variability even in what is described as a "sudden onset." The onset of ME/CFS is often described along the lines of "a flu from which the patient never recovers." In my case, I got a terrible infection (possibly strep throat) and, after a couple of weeks, felt...

Dr. Montoya proposed an interesting idea along the lines that were are seeing more immune related diseases in recent years because we are the descendants of previous generations who survived to adulthood, in part, because they happened to have strong immune systems. The idea being that some...

There was a thread here: https://www.s4me.info/threads/dr-jose-montoya-live-webcast-from-stanford-jan-18th-7pm-pst.1812/

Sometimes it's best to...

There's an overview of the CDMRP here: https://www.ncbi.nlm.nih.gov/books/NBK424509/#sec_000011 It seems to be a program by which Congress funds the Department of Defense to manage various medical research programs which are contracted to outside research groups. Some of this is closely related...

When I press the "Take Action" button, it simply opens a new window identical to the one I just clicked on. It does that so seamlessly that I had opened about 6 new windows before I realized what I was doing. I tried turning off my ad-blocker, but that didn't help. Perhaps someone could post...