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  1. Forbin

    Emerge Q and A with David Tuller

    I suspect that the Mayo Clinic is so convinced of their protean powers to diagnose anything, that they are even more convinced that there must be a psychological explanation when they can't. Humility is not likely their long suit.
  2. Forbin

    A future replacement for Psychiatry? - Hardware visionary Mary Lou Jepsen’s next act is to read your mind—no implants required

    From the climax of the classic, 1951 sci-fi/horror film "The THING From Another World." The soldiers prepare to confront the murderous, alien "THING." Lt. McPherson: "You know, I've got a worry.... What if that THING can read our minds?" Lt: Dykes [hefting an axe]: "Then he's going to be real...
  3. Forbin

    Demystifying Medicine video: "What is chronic fatigue syndrome?"

    Usually, videos like this wind up being fairly equivocal, but not this time...
  4. Forbin

    Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Maureen Hanson

    Dr. Hanson @ 3:33 [bolding mine] Perhaps it's time to declare that there is a biomarker.
  5. Forbin

    Personality and Perfectionism in CFS, 2008, Chalder & Deary

    I'm pretty sure that the subtext of searching for "perfectionism" in ME/CFS is really based on the idea that patients are regarding minor limitations in their physical function as "imperfections" that are dwelt on too much - thus preventing the patient from "adapting" to them, rehabilitating...
  6. Forbin

    Collapsed and distended veins

    Well, one thing I've noticed is that when the veins in my wrists can no longer be discerned, my blood pressure is significantly higher than when those veins are prominent.
  7. Forbin

    NBC News - What Doctors Want You to Know About Chronic Fatigue Syndrome

    I'm pretty sure that this report is from 2015. Although it is only dated "Tue, Feb 10", 2/10/18 was a Saturday, but 2/10/2015 was a Tuesday - and was the day the IOM report was released. The report also talks as though the IOM report has just been released. Still, an interesting look back. I...
  8. Forbin

    ME/CFS Alert - Interview with Michael VanElzakker

    Fascinating stuff! Here is a thread that shows how people can help support Llewellyn King's work on "ME/CFS Alert." https://www.s4me.info/threads/an-appeal-for-help-with-llewellyn-kings-me-cfs-alert-videos.2487/
  9. Forbin

    Telebriefing by Trans-NIH ME/CFS Working Group on March 7, 3-4 PM Eastern Time

    In the teleconference, Dr. Lipkin said this: [From the NIH transcript] By "the findings that came out of UC San Diego" I assume he's referring to Dr. Naviaux's metabolomics study that resulted in this paper in 2016. Metabolic features of chronic fatigue syndrome
  10. Forbin

    Henrik Vogt: IOM review panel biased by patient influence

    Well, it's good to see that his views are unbiased by personal experience, unlike like some of those pesky members of the IOM panel. :rolleyes:
  11. Forbin

    Medscape: Commentary - Psychotherapy Is 'The' Biological Treatment

    I can't decide if it's more like "Altered States" (1980), where other modes of consciousness actually can rearrange your molecules... ...or maybe it's more like a World of Pure Imagination. But I always defer to a Higher Authority....
  12. Forbin

    Tinnitus poll: Do you experience it?

    I tend to get tinnitus about twice a year, in late spring and early fall. It usually only lasts a week or two. Sometimes, it lasts somewhat longer. Because of the pattern, I think it must be related to allergies. It "sounds" like a very high pitched sine wave (~7 kHz). It's usually only in one...
  13. Forbin

    United Kingdom: Science Media Centre (including Fiona Fox)

    They produce a handy flier entitled: Advice for Researchers Experiencing Harassment http://www.sciencemediacentre.org/wp-content/uploads/2013/08/Advice-for-researchers-experiencing-harrassment-2013.pdf
  14. Forbin

    Balance deficits in Chronic Fatigue Syndrome with and without Fibromyalgia (2018) Natelson et al

    A couple of quotes from Melvin Ramsay, circa 1986. This is exactly how it started for me. In my case it was not "spinning" vertigo, but rather a failure of the balance system which made me feel "drugged," intoxicated, or had had food poisoning - sort of as if I was seeing the world through a...
  15. Forbin

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    I like how at the new link to the Telegraph article SW isn't even mentioned in the caption to the photo, making him look like some random, wacky guy. Ultimately, he's mentioned at the very end of the article, but, if you don't already know what he looks like, you still don't know who that wacky...
  16. Forbin

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    Yes, and the older woman is Ruth Gordon. She won an Academy Award for this performance and was nominated for Golden Globes for this and "Harold and Maude" (1971).
  17. Forbin

    Telegraph front page: Wessely photo wth Duchess of Cambridge & BPS back pain treatment

    You're all so suspicious! Show me one example where things turned out badly when a gregarious older person insinuated themselves into the life of a pregnant young woman by offering health advice! : )
  18. Forbin

    United Kingdom: Science Media Centre (including Fiona Fox)

    I'm having trouble figuring out their priorities...
  19. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    Have they done any vision tests? Vision and balance are fairly intertwined. In a neurological workup I'm pretty sure they would have checked for nystagmus, but it's a simple test you could easily have not noticed. There's another simple test done in an eye exam where they cover and quickly...
  20. Forbin

    USA: National Institutes of Health (NIH) intramural ME/CFS study

    I came across this from "A Hummingbird's Guide to M.E." (2006) [ About 35 years ago, I had spinal fluid drawn about a month after onset. I'm guessing they didn't do tests for oligoclonal bands back then since there was no "box" for it on the lab report. There was a mildly elevated protein...
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