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This interests me, too. A doctor once told me that my constant dizziness, which didn't seem related to OI, might be caused by constriction of the tiny blood vessels in the inner ear. It seems plausible that "stiff" blood cells might produce the same effect by a different mechanism. I wonder...

How big was that fabulous donation, again? :thumbup:

Howard Bloom's Wikipedia page says: By coincidence, Styx front man Dennis DeYoung would go on to develop what his Wikipedia page calls "a chronic fatigue syndrome-like disorder" in 1999.

The sleeping in 4-hour chunks thing is actually pretty common... on naval vessels. Smaller vessels don't have enough officers and crew to support more than two sections of watch. Two section watch is basically "four hours on" and "four hours off," so, to get 8 hours sleep, you have to break it...

Just some speculation... If enough people with ME are tested, eventually someone who tested positive will go into remission. If they then tested negative, it would correlate the test to the symptoms. If the test was still positive, however, it might suggest that the nanoneedle is detecting some...

To be fair, according to a 2002 survey, the average length of psychoanalysis in the US was then 5.7 years (longer for certain conditions). Still, in 2010, the New York Times published a story about a woman who had been in analysis for 40 years (not all that time with one doctor).

When I was in college, um... mumble-years-ago, my psychology professor's initial format was to present study after study showing that psychotherapy did not work. In fact, all sorts of studies showed that psychotherapy/analysis actually prolonged patient recovery from emotional problems (people...

One problem that occurs to me is that using "ME" as pronoun in a marketing campaign ("Stand by ME," "Forget ME Not," etc...) will have to overcome a hurdle in the US, at least. While the term "M.E." seems to be in such common use in the UK that news presenters use it without explanation, in the...

Could they instead measure ME/CFS patients against other ME/CFS patients? I'm thinking in terms of stratifying patients by some other test(s) of cognitive impairment and then seeing if their results on this type of fMRI test correlated to their degree of cognitive impairment established by other...

This is probably a very big deal if it's been published in "Cell," one of top-ranked peer reviewed scientific journals. Makes me wonder what else bacterial toxins and their breakdown products are doing that we don't know about.

I don't suppose I'm the first to have thought of this, but if we want a sort "meme" to encourage people to support M.E. patients and research, this might be a good song to co-opt. The lyrics of this 1961 Ben E. King song seem fairly appropriate and there have been many excellent versions (done...

Your right if you apply Jason's prevalence rate to the entire US population, but Jason only measured the prevalence in adults over 18. It could be the same for those under 18, but I don't know if anyone has made that estimate. Applying Jason's value to just the current US adult population you'd...

There really should be an awareness day to bring attention to the plight of researchers who suffer from tunnel vision. That light they see ahead is often coming from a dead end.

Some leading ME researchers and clinicians say the treatment is safe and effective. They also say that if you don't have the treatment you'll never-the-less reach the same level of improvement as those who did receive it if you just wait one year's time. Meanwhile, there is considerable...

Although sometimes it seems mentioned as an afterthought, both Ian Lipkin and Mady Hornig have said that will also be looking at fungi as part of the Microbiome Discovery Project.

If they try to measure patients' "feelings" instead of their objective activity, they may just wind up measuring how comfortable patients are with lying to robots.

I'd be fairly concerned about this: I suppose memory loss (temporary or permanent) would be easy to notice if it were of something obvious like your spouse's name, your phone number, your address, etc... But how would you even know if you lost a memory of something more obscure, like your...

I swear I hear my robot therapist coming up the steps, but he never seems to get here.

How about a blue t-shirt? What could go wrong? "Hear me now and believe me later. You look like a flabby little girly man. Have you seen Sarah Connor? You need more exercise! I'm going to recommend some CBT. That's 'Conan's Barbarian Therapy.' Have you seen Sarah Connor? No, I am NOT a robot...

I wondered about this too, as the only definitive cognitive problem I can recall developing in the immediate aftermath of the onset of ME was "word finding." I noticed this problem quite early in the illness, years before there were any formal definitions of ME/CFS that included it. But, if you...