It seems like this is the most popular suggestion. But there were several versions of it, and if we kept all of them for the poll, we'd lose other suggestions.
How about we see if Justice4ME wins the poll, and then continue the debate whether other versions of the slogan could work better?
Yes, I think ten options is plenty anyway, as long as most agree with how I narrowed it down.
I don't think a hashtag like this will ever trend, but IF it catches on among us patients and supporters, and is used over time when we donate, I hope it might reflect how many we actually are...
In order to make a poll, we need to narrow down our list to 10 suggestions or fewer.
I've tried to make a new list by removing the most similar suggestions and went from this list:
#RealScience4pwME
#ExploreMEScience
#RealSCIENCEforME
#donate4MEScience
#biosci4ME
#ActualScience
#MEScience...
I googled "isometric yoga" and found this study from two of the same researchers from 2014.
Isometric yoga improves the fatigue and pain of patients with chronic fatigue syndrome who are resistant to conventional therapy: a randomised, controller trial
This trial enrolled 30 patients with CFS...
Elling Ulvestad is a specialist in immunology and transfusion medicine, head of the Department of Microbiology at Haukeland University Hospital and professor at the Department of Clinical Science at University of Bergen.
He has written a text for The Norwegian Medical Association titled...
Here are the suggestions so far for a hashtag/slogan to use when replying to the biopsychosocio-crowd with a donation to the ME-cause. Thank you for all the ideas and contributions!
Any other suggestions anyone?
#RealScience4pwME
#ExploreMEScience
#RealSCIENCEforME
#donate4MEScience
#biosci4ME...
Yes. Wyller is known for promoting the view that is doesn't really matter whether you use strict criteria or not. And now he has done a couple of studies he can quote himself from in order to prove it.
I wonder how much money has been spent in total on the NorCapital study and these publications and what really has come out of it..
Now Wyller is doing a trial on music therapy as treatment for ME.
He wants to do an LP-study as well, but it hasn't been funded yet.
BMJ Paediatrics open: Systemic exertion intolerance disease diagnostic criteria applied on an adolescent chronic fatigue syndrome cohort: evaluation of subgroup differences and prognostic utility
Objective Existing case definitions for chronic fatigue syndrome (CFS) all have disputed validity...
Dear @Kafka
I am so sorry to hear about your daughter.
Perhaps Emily Collingridge's book "Severe ME/CFS - a guide to living" might be of interest/use?
Some of the info is most for UK patients, but a lot can also be applied to patients in other countries.
As far as I know the only place to get...
New Science Wednesday Post from OMF.
Do infections lead to lasting changes in immune or metabolic function that lead to symptoms, or is the pathogen still present? This #OMFScienceWednesday, OMF discusses recently funded research into addressing this central question in ME/CFS.
Post on OMF's...
I hear you and have added it to the list :)
#RealScience4pwME
#ExploreMEScience
#RealSCIENCEforME
#donate4MEScience
#biosci4ME
#ActualScience
#MEScience
#4MEScience
#GoFundMEScience
#MEScienceWorks
#MyalgicEncephaloAccuracy
#IDonatedToMEScience
#Justice4ME
#JustScience
#JustScience4ME
I was trying to narrow down the suggestions. It was pointed out that "PWME" in a hashtag would be a second thing for people to "get". But if you want, we can bring back the suggestions with PWME.
I hope within a few days we can narrow the suggestions down to around five and then vote.
Wow. Thank you again for all suggestions. It is so great to have someone to throw around ideas with!
I've narrowed it down and removed the suggestions with Tuller's name and those including PWME.
We are then left with these suggestions. (that doesn't mean you can't come up with new suggestions...
Swedish doctor Per Julin from the ME-ward at Stora Sköndal interviewed by Vetenskapsradion (The Science Radio) about the re-analysis of the PACE-trial.
Says that it shows CBT and GET are not good treatments for ME, and that ME-patients rather need to pace themselves.
Language: Swedish
Duration...
Thank you everyone for your inputs and ideas!
Ideally one short hashtag should sum up a donation to science as response to rubbish, that ME-patients are the ones who are pro science and those most supportive of research into ME, and something outsiders can understand and hopefully support...
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