Professor emeritus Ivar Sønbø Kristiansen from the Department of Health Management and Health Economics has written a blogpost in a medical newspaper where he draw parallels between gender dystrophy and ME as fashion illnesses.
I post this mostly for its oddity - but feel genuinely sorry for...
In this documentary Olli Polo was very general. Together with excellent descriptions from patients and carers this documentary turned out very well. I wish it had English subtitles as well. The psychiatrist who believes ME is something you can get by learning about it looked like a fool. He is...
Article (in Swedish):
Yle: Mystiska trötthetssyndromet ME/CFS knäckte Anton, 28, efter en vanlig influensa - psykiater tror att sjukdomen sprids via sociala medier
google translation: Mystical fatigue syndrome ME/CFS cracked Anton, 28, after a regular flu - psychiatrist believes the disease is...
Thank you everyone who have voted. I am bumping this thread in case others want give their opinion on which slogan/hashtag preferred. #Justice4ME is in the lead.
@mango is there a way we could support Stora Sköndal? A petition perhaps with acknowledgement of their great work which Sweden can be proud of - and other countries should learn from. That they should get all the resources necessary in order to provide the care the patients need.
This magazine also had a good article on ME-research.
Året runt: Det forskas intensitet på kroniskt trötthetssyndrom
google translation: It is researched intensively on chronic fatigue syndrome
Prof. Jonas Blomsberg talks about research into ME and mentions mycoplasmic bacteria, other...
This is sad news. I remember they had a temporary stop also shortly after they had started accepting ME-patients, because so many patients contacted them. They had to hire more people. Hope more resources and more employees will be the result also this time. Perhaps the closing of the...
Very good article in the Swedish women's magazine Året Rundt. A typical story from ME patient Concetta and a bit about the ME-ward at Stora Sköndal and how they are working.
Året Runt: Concetta lider av kroniskt trötthetssyndrom: "Jag fick vänta åtta år på min diagnos"
google translation...
Haven't heard much report from the seminar, so don't know if any news regarding RituxME were shared. Apparently there is still some time left until the study is published.
ETA - but here is a nice report from the rehabilitation center who took part in organising the seminar (nothing about...
Sorry @Samuel The poll's limit is ten options and now we have already started voting.. Not sure how to include your suggestion .. :oops: Perhaps I should have waited a few more days to see if others wanted to join in with propositions, but I was at the same time eager to move this a bit forward..
Front news at the Norwegian site Forskningno (Research.no) who provides news on research and science for a general audience.
The article is mainly based on a radio segment from Sweden about the PACE-trial, the re-analysis and an interview with dr. Per Julin from the ME-ward at Stora Sköndal...
70%
And an update (also sent as e-mail to donators)
Your generosity has helped me close in on my crowdfunding goal, with two weeks left to go. I plan to send everyone an individual thank-you note once the campaign is over. For now, I hope a group thanks will suffice!--David
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