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Does MS not realise he is once again illustrating - to perfection - these people's inability to comprehend what @Jonathan Edwards and others have pointed out - that if the only way you can think of to do a clinical trial will result in evidence of very low quality, with all the attendant risks...

Maybe they need some alternatives, like PUKE, or VOMIT, or RETCH OUT.

But it's got a snazzy name! Isn't that what seems to attract the funding?

Of course they just might do what they have sometimes done before ... absolutely nothing.

Everyone is different. I think some might say that.

Yes, a vicious circle.

I have replied to this, in the hope it will help the commenter to better understand.

I agree with you. There was a time I had the same misunderstanding, especially when espoused by such prominent scientists. It is not until you have personal understanding the non-applicability of the deconditioning theory, and the attendant theories around false illness beliefs, that you...

As I said in my post, the comments of people regarding GET are particularly interesting. And I think it interesting it being a major news story at local level, even if some folk are a bit off the mark.

Merged thread Cambridge ME patients fear 'dirty tricks' at NICE will halt vital review of treatment guidelines A game-changer for the condition review is due to be published next week https://www.cambridge-news.co.uk/news/cambridge-news/cambridge-me-patients-dirty-tricks-21290047 The...

Is there a specified time on Wednesday the new guideline is going to be published? If so, will that be the same time that the embargo is going to be lifted?

This is what convinced me what total bunkum the PACE trial was, once I 'discovered' it in 2016. My wife (the person with ME/CFS) is forever pushing her limits, it's burnt into her DNA. The only difference since having ME/CFS is that her limits are much reduced, but she still strives hard and...

A thought re the notion of supposedly stress-induced PEM. Surely stress goes hand in hand with cognitive load. When stressed it is impossible to not also, at some level, find yourself caught up in the cognitive effort that accompanies it. I appreciate that sometimes that cognitive effort may be...

Yes.

I also have signed to show support. To me the key point, as always, is that CBT/GET trials for ME/CFS, by design, very likely misconstrue harms from treatment as lack of perseverance by the patient; inevitable if you presume a physical illness to be a mental one. These trials are explicitly...

But surely a final diagnosis is not down to the GP?

I can't remember now - does the guideline not include diagnostic criteria also?

If the published guideline is as hoped, then this will have major implications for health insurers. Where are they going to turn to for their ME/CFS expert advice, now their pet ones will no longer have credibility? How are they going to wriggle out of insurance payments if they can't accuse...

If the new guideline is more or less as we hope, then I think it will be the first time the BPS clique, and their support structure, will have been seriously knocked back, and a significant component of their self-entitlement trimmed hard back. If this guideline truly is what we hope, then it...

In order for a person to be able to "do things" their body needs to be able to supply energy at a rate over and above what is demanded by its own life-support systems. Vaguely akin to the way an idling engine in a car is consuming energy even when the car is stationary. More power is required in...