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I suspect there will be a small minority of long time, severely affected sufferers who will inevitably therefore have also become badly deconditioned as a consequence. And that for just some of those their ME/CFS may have spontaneously recovered, but still left them with the consequential...

I would agree with accurately diagnosed. But Helen Nicholls was diagnosed in 2001, so how confident can we be in the accuracy of a diagnosis at that time.

If any response is made to Helen Nicholls' letter, then I very much hope a considered approach is taken with regard to her perspective as a patient, and not on the assumption she would/should understand the science and implications behind what she has said. More an educational perspective might...

Quite. I suspect there will be a subgroup of those diagnosed with ME/CFS who have a condition, or variant of the condition, that GET somehow works for. She would be right in what she said if the worst consequence of trying GET was that it simply did not work, with no further consequences. But of...

I just shared this to friends on FB with the comment: "Given anyone - you, your love ones, friends - could fall prey to ME/CFS, then it's better to understand the reality of it now. Especially as you may already know someone with the condition but misunderstand them without realising. There is...

Not qualified to answer ... but I'm going to have an unqualified guess anyway. Suppose the ME/CFS cohort ended up showing distinctions from healthy controls, but in two or three different areas, possibly overlapping, possibly not. With such a large cohort might that be possible. If so, that...

Very much agree with that. It would be shooting our self in the foot.

Maybe, but I suspect it is just a highly political animal shifting to what he considers to ultimately be the winning side. Good.

Yes, although Hunt is no longer in the Cabinet (and aside from the fact I'm not overly enamoured with him!) he will have the ear of many influential people in and out of government. I think the funding of this study is quite a watershed, because it is so high profile it simply cannot be ignored...

Precisely! Let's not look a gift horse in the mouth.

Agreed ... however, putting my pragmatic hat on after first removing my indignation one, having Hunt's letter there as a clear public endorsement of this funding for a major ME/CFS study is highly beneficial I think. With a bit of luck, aside from being a truly great scientific step in the right...

Unfortunately I can't see this.

If that doctor really did use the word "relapses" in that context, then I would think the day may come where he might need to talk to a lawyer.

Gold at one end and sh*t at the other?

Probably try to make it sound like it was their idea all along, and how it (somehow!) fits in with their grand plan