Search results

The crucial insight for people that often gets lost along the way: Treatments are given to pwME for a condition they do not suffer from. Full stop. Their ME/CFS is not due to unhelpful beliefs preventing them from overcoming deconditioning, yet that is what they are being treated for! If you...

I'm afraid I agree.

Doesn't seem to be very good at connecting the dots does he :rolleyes:. I get the feeling he is being very reactive, and trying at every turn to position himself on the winning side, as he scrabbles to learn a bit more about what he has professed to understand for many years.

Unfortunately it has been a highly successful propaganda campaign for them, and as SW's words from way back confirmed (wanting to call it CFS/ME rather than ME/CFS for that very reason), has facilitated and fostered abuse of the f' word down the decades. Chilvers understandably, as a newcomer...

Trouble is, these are the very things that are hard for novices to this illness to grasp, especially if they do not themselves have the illness. Such things can seem so trivial and so blatant to people in the know, that it can be very hard to step into the shoes of those trying to get up to...

Moreover, it has nothing to do with the validity of the science! If Chivers wants to get to the bottom of any 'harassment' claims, he needs to get to the bottom of whether it is harassment, or is instead justifiable scientific critique. And he will not get to the bottom of that unless he puts...

Which comes back to the principle of striving to demonstrate that something does not work, and in failing to do that have confidence that it does. The very thing the BPS folk cannot get their heads around, nor their motives.

But that is true of all user of tech that us engineers produce :).

Just imagining what medicine would be like if the medical devices in ICU had been designed and developed by "BPS engineers". Instead of medics looking at the reliable readings they are used to, they would probably have to press a button and then an electronic voice would pipe up "please all...

Ironically the medical profession is using technology all the time that is designed, manufactured and tested to the most rigorous safety standards, and would rightly complain bitterly if such medical equipment failed unsafely.

Since I've been in involved in these forums I've become convinced of the truth of this. They seem to think you can superimpose a neat numeric scale onto things that are nothing like that simple to quantify. Any relationship would be unlikely to be a neat straight line, and quite apart from that...

Harassment and science - what have the got to do with each other? Nothing much. If BPS scientists are responsible for promoting and engaging in rubbish harmful science, how do any harassment issues (even if they were true) change the fact they are responsible for promoting and engaging in...

Should be an ME/CFS patient, they have been on the wrong end of harassment for many years from the medical establishment thanks to naff BPS research.

Maybe it needs a well informed comment being made.

An interesting point.

This is what the PACE GET participant's manual says: Although the PACE papers primarily refer to CFS, if the authors had really thought that their treatments should be confined to CFS, and not to ME, then why have they never, ever, spoken out about the existing 2007 NICE guideline which says...

This is ludicrous BS, because it sets up the premise that some public vote on what to do is legitimate in the first place ... it is NOT! And no one should be implying it is.

I also suspect he just wants to muddy the waters so that people new to all this and trying to understand, will get confused and not pick up on the info that highlights just how hopeless he is.

I do wonder if it is much more cynical than that. Maybe he understands perfectly but in order to protect self interests is playing to the crowd with guff that seems, to his fan base, to support what he does.

How many things can you get confused about in one sentence. No it is not being said that exercise, of all forms, invariably causes harm; it is that GET and its derivatives can cause harm, in the in the form of significantly reduced capability compared to pre-therapy. Pacing is a form of...