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  1. JaimeS

    Michael Sharpe skewered by @JohntheJack on Twitter

    We can only hope.
  2. JaimeS

    Michael Sharpe skewered by @JohntheJack on Twitter

    Excellent, sir.
  3. JaimeS

    'Shaking and trembling with ME/CFS' - Chronically Hopeful

    New thing for me: intention tremor, albeit probably a little intense to be that, but otherwise the same -- you stick your arm straight out to reach for something, it shakes. Seems to come with peripheral NS issues, so B vitamins have been helping, some. Early in the disease, I recall the...
  4. JaimeS

    Is this allergy or something else?

    My IgE is perpetually high, but I don't seem to have IgE-based allergies to anything they commonly test for. Lots of IgG based sensitivities, though, some of them extreme in comparison to what others experience. For example, if I get dairy, I begin to have problems breathing and my throat...
  5. JaimeS

    #MEAction - UK Organiser

    Love this discussion, everyone. Thanks. :)
  6. JaimeS

    Is this allergy or something else?

    Well, I have had my oxygen saturation measured. It is actually dropping at these points. Lowest I've ever seen it go is 78% saturation; but that was during a shock-type reaction, so perhaps a drop of that magnitude requires other issues (yes, it WOULD be lovely if actual investigation...
  7. JaimeS

    Canada: Woman With Chronic Fatigue Syndrome Denied Disability Benefits

    It mentions it someplace -- bottom of the page maybe? I know I saw it. :)
  8. JaimeS

    Canada: Woman With Chronic Fatigue Syndrome Denied Disability Benefits

    The law firm wrote the press release!
  9. JaimeS

    Is this allergy or something else?

    THIS HAPPENS TO YOU TOO? Comes with dyspnea in my case. After about 5-min in a Lowes for example, I'm gasping. Happens in any warehouse-type store with a high enough ceiling. Possibilities are that we need a higher amount of oxygen than average, or that we're not great at utilizing oxygen...
  10. JaimeS

    How to get 'Voices from the Shadows' viewed by more people

    I've passed this on to #MEAction UK -- they may have some ideas! I'll think on this as well.
  11. JaimeS

    Jaime S - #MEAction Director of Scientific and Medical Outreach

    Thanks so much everyone! :hug::hug::hug:
  12. JaimeS

    Re-framing GET as pacing, or vice-versa

    Ah, btw -- check here https://www.meaction.net/resources/reports-and-fact-sheets/ There are some reports on GET that might be useful in formulating such a thing. All created by various ppl, some #MEA, some not, who have agreed to put their info up for the community to use.
  13. JaimeS

    Re-framing GET as pacing, or vice-versa

    GREAT idea! Also... The ten pence. The posset of gruel. The apple casting us out of paradisical clinics... not sure whether to :arghh: or :laugh::rofl: Ditto on all counts, if you're all right with allowing some rough colonial to have a gander. The cynic in me says that they pretty much...
  14. JaimeS

    Re-framing GET as pacing, or vice-versa

    I read one of these carefully all the way through and got the absolute chills. I probably had an especially heinous one, but I could hardly believe my eyes; I felt like I was in a 1984-esque dystopia. The phrase 'trigger warning' applies.
  15. JaimeS

    Re-framing GET as pacing, or vice-versa

    'Mild' here. And yet it moves.
  16. JaimeS

    The New Yorker, Article: Memoirs of Disease and Disbelief, May 2018

    I interpreted it to mean that psychiatry is the dumping ground for diseases other clinicians don't understand. But many times when the patient 'arrives' at psychiatry, disheartened and beaten down, the psychiatrist will be the one to say, "I don't know what you have, but you don't belong here...
  17. JaimeS

    The New Yorker, Article: Memoirs of Disease and Disbelief, May 2018

    This is a really brilliant article, I do recommend ppl read the whole thing.
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