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  1. rvallee

    USA: The RECOVER Initiative - Long Covid research

    One thing can honestly be said about this and these people: they are very talented at wasting public funds. You'd almost think they were trained for it. It would be easy to be confused given the absolute perfection with which they capture, then utterly waste, millions of dollars meant to help...
  2. rvallee

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Sounds like they didn't apply the definition correctly because this is ridiculous. Or chose an interpretation of it that is useful to minimize, which is equally ridiculous. We already knew that Wyller is a terrible researcher, didn't need this garbage study to confirm it. Like clockwork, I've...
  3. rvallee

    Long Covid in the media and social media 2023

    I think it's safe to say that generally speaking, the medical profession has learned nothing of value out of COVID. Some have, on a personal basis, but it's beyond clear that the system is built to be mostly indifferent to individual issues, it serves merely to keep enough people at work and...
  4. rvallee

    Long Covid in the media and social media 2023

    And of course Long Covid was coined for anything lasting longer than 2 weeks, which was clearly a top-down message sent throughout as this is what everyone reported. In the first 2 years that's what nearly every long hauler reported being told: it's impossible to last longer than 2 weeks. Like...
  5. rvallee

    News from Germany

  6. rvallee

    News from Canada

    I'm really confused by them calling this research. Cochrane doesn't do research. I don't even know what the hell they will even be doing here, since their whole business model is useless here. GIGO with lots of GI is going to give us nothing but GO. How will they even spend $9M simply doing...
  7. rvallee

    Floaters, visual snow syndrome and blurry vision

    Moved posts I still haven't seen anything about floaters and it's damn frustrating. Most of the vision issues are clearly neurological, but the damn floaters have to be observable, I don't understand how it takes so much time to do basic stuff like this. They're reported quite a lot in LC...
  8. rvallee

    The effectiveness of mindfulness-based interventions in inflammatory bowel disease: A Systematic Review & Meta-Analysis 2023 Naude et al

    Citation badly needed. Assessing the usefulness of mindfulness by using questionnaire answers about mindfulness things has very strong "healing crystals therapy clearly showing an increase in healing-crystal-wearing" energy.
  9. rvallee

    The Effectiveness of Psychological Interventions for Rheumatoid Arthritis (RA): A Systematic Review and Meta-Analysis 2023 Nagy et al

    No, you cannot assume this. In fact it makes no sense at all. This is a basic logical fallacy. The logic is always the same circular nonsense: Illness has psychological consequences Addressing those consequences is considered a bit helpful, maybe, by some The illness has a psychological cause...
  10. rvallee

    High Perceived Stress and Low Self-Efficacy are Associated with Functional Somatic Disorders: The DanFunD Study, 2023, Fink et al

    Unrelated but your use of the word central lit up in my brain that it's been quite a while since we've heard about central sensitization. Because for all the junk about chronic illness being fashionable labels, like everything coming out of psychosomatic ideology: it's clearly projection. The...
  11. rvallee

    Recruiting: A Study of a Positive Emotion Intervention for the Treatment of Long COVID-19 Symptoms, University of California, Lopez

    There's some validity for actual effective treatments when they start showing promising effects and patients feel being cheated on a real chance for improvement, but being on a waiting list for "A Study of a Positive Emotion Intervention for the Treatment of Long COVID-19 Symptoms" is about as...
  12. rvallee

    Recruiting: A Study of a Positive Emotion Intervention for the Treatment of Long COVID-19 Symptoms, University of California, Lopez

    I always assumed when they use "waiting list" it's just a control arm for no intervention, to compare with natural outcomes. Maybe they use the waiting list meme because of some expectation effect but really that's just a control for nothing. In some trials the participants are told they can do...
  13. rvallee

    COVID-19 and the Physio4FMD trial: Impact, mitigating strategies and analysis plans, 2023 Marston, Carson, Edwards et al

    And yet, this treatment model has been used for years. Decades, if we're splitting hair. But, sure, trying the same thing again is an idea. An idea about money. Because when you set out to make an economic analysis without even knowing if something works, it's because it's rigged to provide a...
  14. rvallee

    Norway: Article about ME seminar with security

    I truly don't understand how it's acceptable to have such bigoted opinions, opinions!, about an illness affecting millions. Opinions that are then acted upon, there is no separation of private and professional views here. This isn't like separating private religious beliefs with a duty-bound...
  15. rvallee

    Recruiting: A Study of a Positive Emotion Intervention for the Treatment of Long COVID-19 Symptoms, University of California, Lopez

    No one doesn't have access to self-care. The self part is not some random label, despite the standards in BPS land. It means something. We've been seeing this weird trend where studies have supervised self-managed care, which has the downsides of both and no upsides because this is quackery...
  16. rvallee

    Online Health Communities in Controversy over ME/CFS and Long Covid, 2023, Jackson

    Something about PACE having at least 80% or so? All minor details that change nothing, grasping at straws.
  17. rvallee

    How do long COVID patients perceive their current life situation and occupational perspective? ... 2023 Schmachtenberg et al

    Everything they suggest is more expensive than doing a large research effort and doesn't even address any of the actual issues. If the role of medicine is simply to get working age adults to work as much as possible, even that doesn't even make sense since this is obviously treatable. Time and...
  18. rvallee

    OpenAi's new ChatGPT

    Yup. AI will be massively better at it because it'll be as if an entire team of all the specialties had ample time to consider every possibility. It will even do the empathy part a lot better, because the source for its knowledge base will be the patients themselves. It will probably be the...
  19. rvallee

    OpenAi's new ChatGPT

    I've only ever seen this analogy described by MDs as simply an explanation that patients buy because it's just ambiguous enough and they don't object to it too much because of how generic and pseudoscientific it is. So it definitely got it right. It plays the same role as the "chemical...
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