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  1. rvallee

    Psychiatric disorders and the onset of self-reported fibromyalgia and chronic fatigue syndrome: The lifelines cohort study 2023 Creed

    First, what is a psychiatric disorder would have to be defined. And it isn't, it's arbitrary and capricious. It invariably has the meaning of having to do with the brain, the organ itself, or basically anything and everything, or even the blatant logical fallacy of "we don't know what this is...
  2. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Stalling. Clearly zero intention of doing anything. What a terrible organization, but sadly not that especially bad compared to the rest. These institutions are completely removed from reality, as removed as the most walled-off aristocracy has ever been. All palace intrigue and politics behind...
  3. rvallee

    Multiomic characterisation of the long-term sequelae of SARS survivors: a clinical observational study, 2023, Li et al

    (SARS-1) Multiomic characterisation of the long-term sequelae of SARS survivors: a clinical observational study Open Access: https://www.thelancet.com/journals/eclinm/article/PIIS2589-5370(23)00061-5/fulltext Published: February 27, 2023 DOI: https://doi.org/10.1016/j.eclinm.2023.101884...
  4. rvallee

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    I don't really think it deserves its own thread, it's a garbage "study" not worthy of discussion. But there is... this: Trust in sources of information on COVID-19 at the beginning of the pandemic's first wave and incident persistent symptoms in the population-based CONSTANCES cohort: A...
  5. rvallee

    Data-driven analysis to understand long COVID using electronic health records from the RECOVER initiative 2023 Zang et al

    Most long haulers still report complete stonewalling about getting any of their issues on record. Most physicians are refusing, still gaslighting most patients, likely on orders from their employers. So that's about as useful as this study is. I'll never understand the level of comfort the...
  6. rvallee

    “You have to believe the patient”: What do people with fibromyalgia find helpful (and hindering) when accessing health care? 2023 Nishikawara et al

    The framing for those is "within a BPS framework". No one cares about a BPS framework. Not one damn patient. Competent medical care is what people expect out of medical professionals, it is what they're trained to do and outside of human biology and physiology they got nothing. The rest is nice...
  7. rvallee

    A Cross-Sectional Study of the Health of Emerging Young Adults in England Following a COVID-19 Infection 2023 Newlands, Chalder et al

    I've seen it presented as "Long Covid has nothing to do with COVID". And of course the minimizers who gloat about this have their replies filled with antivaxxers and other trolls who agree with them and laugh along. It's made out to be an invention by the media to sell fear about COVID. And of...
  8. rvallee

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    The same can be said of the early criteria for CFS that only had fatigue like Sharpe's Oxford, or the least rigorous application of Fukuda. And obviously the whole of MUS/conversion disorder They are useless by way of being too generic. Which is exactly what the BPS model does: always generic...
  9. rvallee

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    I started reading this with skepticism, thinking surely it can't be that brazen. Yup. Literally just as immoral behavior as any of the worst things the tobacco companies did. It's hard to believe this is basically common and accepted in medicine but damn it, this is really happening. And has...
  10. rvallee

    “You have to believe the patient”: What do people with fibromyalgia find helpful (and hindering) when accessing health care? 2023 Nishikawara et al

    It's literally discriminated against. What the hell is up with pretending this isn't happening or has nothing to do with the horrible outcomes that are literally described as blatantly discriminatory? What is missing? Medical care. The rest is irrelevant when it concerns healthcare, this is...
  11. rvallee

    Heart Rate Variability and Somatization in Adolescents With Irritable Bowel Syndrome 2023 Semen et al

    Gotta love how for years it was "you can't use wikipedia as a source, anyone can write anything in there and many statements aren't backed up by anything", and then you find that it's basically standard in medicine to do just that, pass one's own opinion as if it's some fact, as long as that...
  12. rvallee

    Producing ME/CFS in Dutch Newspapers. A Social-Discursive Analysis About Non/credibility 2023, de Boer, Slatman

    I haven't once before seen multisystem illness being about anything but affecting multiple organ systems. It takes extremely bad faith interpretation to even pretend it could be about multiple possible causes. This seems like a made-up argument by someone who didn't bother understanding what the...
  13. rvallee

    Poll: Who will find the answer to ME: Humans or AI?

    AIs can't do this on their own, they require values and those are described to them. There is no objective definition of a good or bad study. For example a Cochrane AI doing systematic reviews would be given instructions on how to rate open label trials with subjective outcomes run by biased...
  14. rvallee

    Long Covid in the media and social media 2023

    DARVO much. This is very mild and accurate... it's barely criticism, it's pointing out a basic fact. Absurd. These people abuse their power like bullies. Good people never use DARVO. Never.
  15. rvallee

    The Role of Psychotherapy in the Care of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome 2023, Grande,Vink,Hughes et al

    I can see this as the sort of necessary compromise that is smart politics for now. We will not find any consensus with the obsession to, somehow, frame this as mental illness. So psychotherapy is not going away any time soon, it's worth making it less harmful. We shouldn't have to still spend...
  16. rvallee

    Prevalence and predictors of long COVID among non-hospitalised adolescents and young adults: a prospective controlled cohort study, 2022, Wyller et al

    Heh. Another notch on the "it's always worse in context and the more context you add the worst it is". I am no longer surprised but the scale and intensity of bias and corruption in medicine are seriously extreme. Way too much Truthiness. It shows that there is no representation or...
  17. rvallee

    Post-COVID-19 condition and persisting symptoms in English schoolchildren: repeated surveys to March 2022 2023 Warren-Gash et al

    Even though, somehow, evermore money spent on this never actually yields any benefits. It's always "getting worse", in part by conflating unrelated issues and counting them here, but also because the root causes are never addressed, never even looked at, having chosen models so generic they are...
  18. rvallee

    Long Covid in the media and social media 2023

    Clearly, causing severe disability in thousands, millions even, is not considered harm. It simply has to not be recognized by the people doing the harm. Great system they got there. About as legitimate as a judge committing a crime, then saying "I'm a judge, this is not a crime" and letting it...
  19. rvallee

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Show me your budget, and I will know your priorities
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