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  1. rvallee

    United Kingdom: Science Media Centre (including Fiona Fox)

    Typical to form, the SMC seems to be willfully participating in the blaming of lockdowns-that-were-very-limited-and-in-no-way-actual-lockdowns leading to reduced infections. It repeats the lie that those pathogens were not seen in the last 3 years, which is actually a big tell about medicine's...
  2. rvallee

    Psychological consequences of long COVID: comparing trajectories of depressive and anxiety symptoms... 2022 Fancourt et al

    It's almost like for all intents and purposes that, in the context of illness, depression and anxiety can simply be substituted for illness. Especially as they pretty much literally ask about common symptoms of illness, as a result of having labeled illness as depression or anxiety for decades...
  3. rvallee

    Toward a possible trauma subtype of functional neurological disorder: Impact on symptom severity and physical health 2022 Paredes-Echeverri, Perez

    This is the kind of stuff that makes this entire thing a clown show. Trauma, so generic and vague they call them life experiences, is the foundation of conversion disorder, has been for decades. And they pretend, literally over a century later, to ponder this as a subtype. It's obsessive...
  4. rvallee

    OpenAi's new ChatGPT

    To anyone in the know, Stackoverflow in even greater shambles. It's basically THE website to ask programming questions. And GPT does it far better. Although it's likely SO was a source of a lot of the data. But the explanations GPT offers are sometimes mind-blowing, it can even understand a...
  5. rvallee

    Approach to the child with fatigue: A focus for the general pediatrician 2022, De Nardi et al

    Uh, no, it is not. Fatigue means its own thing. Muscle weakness is its own thing. Sleepiness is also its own thing. PEM is definitely its own thing. This is FUBAR, a "scientific" paper where basic words are essentially meaningless. We can't have a serious discussion when basic facts are in...
  6. rvallee

    Association of Initial SARS-CoV-2 Test Positivity With Patient-Reported Well-being 3 Months After a Symptomatic Illness, 2022, Spatz et al

    This study is making the rounds in denying circles, including the hardcore conspiracists. As far as I can tell, they sampled people with acute illness of any kind as long as it looked enough like COVID to be suspected, separated between COVID+ and COVID-, then did a superficial assessment. It...
  7. rvallee

    Association of Initial SARS-CoV-2 Test Positivity With Patient-Reported Well-being 3 Months After a Symptomatic Illness, 2022, Spatz et al

    Full title: Association of Initial SARS-CoV-2 Test Positivity With Patient-Reported Well-being 3 Months After a Symptomatic Illness Open access: https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2799116 Question How do patient-reported physical, mental, and social well-being compare...
  8. rvallee

    Increases in Stress Hormone Levels in a UK Population During in the COVID-19 Pandemic: A Prospective Cohort Study 2022 Jia,Chalder et al

    It's pretty ridiculous to spend this much money to get this little data that really tell us nothing. This kind of associative data could go in any direction or be explained by a number of factors. No wonder research is so expensive when it's basically 90% waste as a baseline. The entire process...
  9. rvallee

    Meeting the Burden of Self-management: Qualitative Study Investigating the Empowering Behaviors of Patients and Informal Caregivers, 2022, Duncan et a

    Self-management of chronic illness is not empowerment. It's pretty much the exact opposite, it serves to trivialize and as an excuse to do nothing. Empowerment means power. We have no power. In the context of healthcare, we have negative power, we are constantly bullied and talked over, we...
  10. rvallee

    Data-driven identification of post-acute SARS-CoV-2 infection subphenotypes, 2022, Zhang et al

    Hehe. Not AI-generated, though, this is an old botched taxidermy. Many exotic animals brought by explorers did not really have much of a before picture, so many early specimens looked terrible. Because they were missing data, was mostly the point I tried to make. Without a plan for what it...
  11. rvallee

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    This says a lot about the limits of empirical evidence, how it's possible for thousands of professionals to be unable to see what's right in front of them, because an ideological model tells them otherwise. They simply cannot do this, one way or another they will follow a theory, no matter how...
  12. rvallee

    Severe myalgic encephalomyelitis/chronic fatigue syndrome in children and young people: a British Paediatric Surveillance Unit study 2022 Crawley et a

    Yup. All of item 1, and one of item 2, where PEM is. However one option in item 1 kind of describes PEM, so this is very confused: Although I'm not even sure what I'm reading here: Wut?
  13. rvallee

    OpenAi's new ChatGPT

    Damn the one about patient involvement is also really great. What's even more great is that this is mostly based on what is said, not what is actually done. So you have people like Greenhalgh who can write about patient engagement in research, but explicitly reject us. The exemptions and...
  14. rvallee

    OpenAi's new ChatGPT

    LMAO, this is seriously smarter and closer to reality than everything BPS I have ever read combined. It even understands the underlying arguments better since it doesn't do arbitrary exemptions. Huge potential here, worth exploring. Although I don't see this as angry, it's really spot on, actually.
  15. rvallee

    Long Covid in the media and social media 2022

    For a change of pace, photos instead of the usual text, the main LC subreddit is having a "faces of LC" moment since yesterday and continuing today. Lots of before and after photos. It's easy to lose sight that there are millions of real people behind when we never really see them, see us. Link...
  16. rvallee

    Reduced Muscle Strength in Patients with Long-COVID-19 Syndrome Is Mediated by Limb Muscle Mass 2022 Ramírez-Vélez et al

    This is especially relevant considering how massive the strength imbalance between sexes is. It's something like the average male is stronger than 99% of females, this completely skews any cohort that isn't completely matched far above any statistical significance, let alone a clinical one. In...
  17. rvallee

    Understanding Long COVID; Mitochondrial Health and Adaptation—Old Pathways, New Problems 2022, Nunn et al

    I don't think there is a reason to think any of this is "sub-optimal", mitochondria may in fact be doing what they need to be doing, because of an upstream cause, as all illness is. No reason to think the terrible exhaustion from acute illness is fundamentally different than when it is chronic...
  18. rvallee

    OpenAi's new ChatGPT

    A smart person on twitter made the suggestion that this could be used by pwME to write emails and documentation when working through an official process, say like comments about guidelines. Some examples of how this tool can be used to take a text that is very informal and make it sound...
  19. rvallee

    Gravity and the Gut: A Hypothesis of Irritable Bowel Syndrome 2022 Brennan

    LMAO this better be a joke paper or just close the whole thing down and restart academia from scratch.
  20. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    This person obviously cannot lead a medical research institution. Deeply, deeply unserious. A small number of positive anecdotes: must be considered true and whole. A very large number of negative anecdotes: meh There it is, complete cherry-picking in a nutshell. I think this is why all...
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