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Shure used the same framing, illness that has "eluded" medicine. While the article cites medical doctors who are making medical claims about this, how they actually understand this medically using their medical experience as medical doctors. They clearly see no conflict here. That this...

This is actually hard to explain. Did they just straight up not search for it? Or are they pretending they aren't there? I don't get it, there are matches for this, even using a dumb plain text search. To be fair, most of those are really bad, but then so are the ones they selected. And the...

There are conditions that make people intolerant of, or at least at risk for, high intensity exertion but who otherwise are fine, they can otherwise live a mostly normal life. PEM is not the same thing as that, and that conflation is highly problematic, as we can see with the continued...

At this point, we should look beyond each individual misdeed and talk about the pattern, the fact that this kind of unethical behavior is the norm with these people. Everywhere you turn you find the same backroom deals, influence operations in what are supposed to be independent proceedings...

The control here seems to be any pathogen other than COVID, with maybe COVID as well anyway, given mass reinfections and the unreliability of the tests. Could be a much milder one. Could be worse. Could be a different one for every single "control", even COVID. I don't think this is a good way...

One thing I will disagree with is with David Marks: This is not misuse of the BPS model. This is the BPS model. It's being used for what it's intended for. It's the modern name for psychosomatic ideology, and this is how psychosomatic ideology has always been used.

No evidence of that. Literally none, it's a vague generic explanation that sounds like it's something but actually there is no claim here at all, it's as hollow as "detoxifying". Every single reason these ideologues use to deny chronic illness applies to them far more. Every single reason. I...

I have used that comparison before, but it wasn't about the illness so much as about those who keep us locked in. I sure hope to see that groundbreaking research one day. I am following everything happening and have yet to see it, but I sure hope it starts soon. I would also like it for people...

Indeed, never had any. The problem isn't just with us, the BPS model is simply the new name for psychosomatics, it's all bad. For everyone, no matter the purpose. It's just legacy nonsense, grandfathered beliefs invented in a backward culture. But one thing I would dispute is bio-political...

In fact, it's right there in the conclusion: The WHO Borg CR-10 is a structured pacing protocol shown for the first time in the current literature to substantially reduce PESE episodes whilst increasing activity levels even in a cohort of individuals with long-standing PCS symptoms Literally...

So, it seems that the authors of this paper invented a WHO thing that doesn't exist. There is a section called "WHO Borg CR-10 pacing protocol", of which I added an image in a comment above. This is what is meant by phases in this paper, patients move between the "phases" of this "protocol"...

Uh. I thought it was weird that in the "Effect of using a structured pacing protocol on PESE" paper included this "pacing protocol" from the WHO: But upon searching for it, there is a thing called BORG CR-10 from the WHO, but it's not a protocol for anything, it's a generic scale of...

It's possible, but those emails were a few weeks ago and the update is "technically" happening, as far as we are told. So it hasn't been stopped, if it goes as we have been told, this IAG review should replace the Larun one, but frankly it's getting hard to believe. If there were any concerns...

At least this settles they can't be trusted for anything, can't actually learn. No matter what, they will keep doing the same things, for their own purposes. They simply don't understand what the words mean, and it's become clear that illness is an experience that absolutely has to be...

Aside from everything about fatigue being so generic and awful none of it applies, exercise intolerance is not the same thing as PEM. They can't even be bothered to understand the meaning of the words they are using. The process is as smart as a fully text-based research, all it does is match...

Literally no one does that. Obviously. Medicine is moving backwards, giving more space to pre-science ways of just talking speculative BS. This is somewhat similar to old microeconomic models that used to make assumptions of people "optimizing" their choices based on perfect information...

Speaking of which, it would be great if we could have some details about this from Signe Flottorp: The dates surrounding this are in November 2022. This is long after the IAG was formed. And yet Flottorp seems to be under the impression that they have stopped it. Maybe she only means...

Ironic, but this is one of the darkest truths with the continued obsession with psychosomatics, it not only ruined medicine's ability to deal with chronic illness, it also effectively made all efforts related to mental health so much worse that they amount to nothing, they ended up mixing so...

I tried writing something but I don't know how to put so much loss in tweet form. Maybe others will contribute things that will give a starting for more to do the same.

Not sure I understand the value of publishing a paper out of the section that most people will skip. Anyway this is about this aspirational document that consists mostly of "if we figure out how to rehabilitate those patients, we could rehabilitate them but let's rehabilitate them anyway, I...