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  1. rvallee

    Long Covid Advocacy: Is the “greatest medical scandal of the last century" being repeated for a generation of children? (about the CLoCK study)

    We can definitely see that it's not a clinical study. No confusion here. But the second part is a blatant lie. I don't know how these people think they're right when they have to lie so much about everything they do, but it's even more absurd that no one in the system cares, how this practice...
  2. rvallee

    Efficacy and tolerability of an endogenous metabolic modulator (AXA1125) in fatigue-predominant long COVID: a single-centre, double-blind, randomised

    The essence of a good trial or experiment is: all other things being equal. There has to be certainty that one thing is being evaluated, and one thing only. Most of the effort in conducting a reliable experiment is in achieving this, in eliminating all possible noises. It's important enough...
  3. rvallee

    Scientific reports: Prevalence of long COVID complaints in persons with and without COVID-19, 2023 - Magnusson, Flottorp et al

    Given that it already has, this is weird. The costs are already enormous, thanks to deniers and systemic failure preventing the development of expertise and effective treatments. And also, is burden to healthcare the only concern? Morbidity is simply entirely irrelevant? Obviously not. Any...
  4. rvallee

    Long Covid Advocacy: Is the “greatest medical scandal of the last century" being repeated for a generation of children? (about the CLoCK study)

    I sure love a good naming and shaming when it is deserved. More of this. People are failing us. Not nature. Not fate. People. Even systems are made of people. Name them. Shame them. Send them packing, they have a great career in alternative medicine if they really want to keep doing the same...
  5. rvallee

    Long Covid Advocacy: Is the “greatest medical scandal of the last century" being repeated for a generation of children? (about the CLoCK study)

    Beyond that, the whole set of studies funded by this round has turned out to be a terrible waste of resources. Unless I'm mistaken, they're all completed. And absolutely nothing to show for it. Not that research is guaranteed to produce results, but the selection of proposals was very weak and...
  6. rvallee

    Efficacy and tolerability of an endogenous metabolic modulator (AXA1125) in fatigue-predominant long COVID: a single-centre, double-blind, randomised

    Well, yeah, the CFQ is known to be lousy like this. Exactly for the purpose of giving a false positive even when there's nothing, it's what it was invented for. So at best, this study has to be redone, competently this time. Otherwise this is useless. Using useless tools and assessments give...
  7. rvallee

    Research funding: Examples needed of ME research projects failing due to not getting funding

    We're number 1! We're number 1! Here you can distinctly see the difference a biomedical does compared to a psychosomatic one: The difference? Literally everything. It's the difference between success and locked-in failure.
  8. rvallee

    News from the USA, United States of America

    Call for Public Comment from the National Academies of Sciences, Engineering, and Medicine https://survey.alchemer.com/s3/7301239/Long-COVID-Definition-Online-Public-Comment-Portal A National Academies of Sciences, Engineering, and Medicine committee is conducting a series of stakeholder...
  9. rvallee

    USA: 'Examining the Working Definition for Long COVID' consultation 2023

    Call for Public Comment from the National Academies of Sciences, Engineering, and Medicine https://survey.alchemer.com/s3/7301239/Long-COVID-Definition-Online-Public-Comment-Portal A National Academies of Sciences, Engineering, and Medicine committee is conducting a series of stakeholder...
  10. rvallee

    BPS attempts at psychologizing Long Covid

    Medicine: let's combat medical misinformation Also medicine: here's a bunch of medical misinformation It's the absolute confidence in bullshitting that is defeating. Nothing that they say has any validity, but they express it with the same confidence, bravado even, as the validated stuff. This...
  11. rvallee

    Functional Neurological Disorders - A Common but Often Unrecognized Diagnosis 2023 Barth and Gegusch

    And the difference is... ? Sometimes they just say the quiet part out loud. And again. "Neutral" as a way of saying "BS" without admitting so. When you have to lie to sick people, you are wrong. Full stop. It's never right to do this. Never has, never will. So much for duty of candor. Still...
  12. rvallee

    Artificial intelligence in medicine and science

    Yup. This is a good example of how not to apply AI: trying to do the same thing, but with AI. AI changes what can be done entirely, as radically as the old paper-and-post mail system is from modern instant messaging and social networking. Simply reading from academic/official sources is not the...
  13. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Having used the excuse of giving a veto to authors on retraction, that ship has sailed and sunk a long time ago.
  14. rvallee

    Amanita muscaria extract potentiates production of proinflammatory cytokines by dsRNA-activated human microglia 2023, Wagner et al

    It's been interesting seeing the criticism laid out against psychedelics within the mental health professions, all fair and valid, considering that it applies at least as much as, well, literally everything they do. For sure all the psychosomatic stuff is even worse, and it's super popular...
  15. rvallee

    Exercise Pathophysiology in ME/CFS and Post-Acute Sequelae of SARS-CoV-2: More in Common Than Not? 2023, Joseph, Systrom et al.

    Nope. In fact most studies show the opposite. People have been saying this, without any basis, but that's a very different thing. It was an assumption, a bad one, and something experts shouldn't ever be doing. Medicine has been recently challenging physical sciences, especially fluid dynamics...
  16. rvallee

    News from the USA, United States of America

    Posts moved from Long Covid in the media. Long Covid Help Gets Funding Push From Biden HHS, Lawmakers https://news.bloomberglaw.com/health-law-and-business/long-covid-help-gets-funding-push-from-biden-hhs-lawmakers Hundreds of millions of dollars would go toward efforts to diagnose and treat...
  17. rvallee

    Effectiveness of a blended multidisciplinary intervention for patients with moderate [MUPS] (PARASOL): 2023 van Westrienen et al

    Waiting for the trial where they literally test all of them all at once. The treatment? Literally every imaginable treatment, all at the same time. Because, truly, the one thing missing from a generic model is to make it even more generic. For sure that's the flaw, it's just not generic enough.
  18. rvallee

    Long Covid in the media and social media 2023

    The whole "well-designed" is a classic No true Scotsman fallacy. What does it even mean? There have been many hundreds, in addition to likely above a million clinical applications of the very same model. A process that doesn't record any meaningful data, making any accountability impossible...
  19. rvallee

    “You have to believe the patient”: What do people with fibromyalgia find helpful (and hindering) when accessing health care? 2023 Nishikawara et al

    I don't think that false promises count here. There is wide gap between what the BPS model pretends to be, and what it actually is and delivers. The gap is the whole of reality. For sure, anyone would want what it promises to deliver. What the BPS model pretends is nothing but a bunch of false...
  20. rvallee

    Resources about the history of M.E./CFS

    https://www.margaretwilliams.me/ An excellent resource.
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