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By all means start or join other symptoms threads. There are lots of threads already, so you may find one that fits, or you can start another one if you don't find one. The symptoms forums are all listed here: Symptoms and signs discussions And the members only forum is here: Symptoms and Signs...

Yes.

For a while before the pandemic I employed carers from a care agency. The care agency did six monthly reviews of their clients needs with the client and wrote it up and gave me a copy. In my case it was very simple, as all they needed to know was the nature of the tasks I would ask them to do...

I had a similar reaction, but I think the app and database was already set up for the nutritional stuff and when Covid came along they adapted it to use collect covid data.

There is a lot of emphasis in the above article and FAQ's on the project being patient led. That is, of course, a good thing if experienced patients who are accustomed to reviewing questionnaires related to ME/CFS are involved and listened to. My impression, and it's only an impression since I'm...

There is what seems to be a new article about this research project on the MEA website which was linked from today's email newsletter. I'm copying it here for ease of quoting and discussion: RESEARCH: CLINICAL ASSESSMENT TOOLKIT The ME Association is funding a study led by Prof Sarah Tyson of...

There is such a massive difference between doing something every day with minor adjustments and little detriment, and doing the same thing once on an average day, but crashing afterwards, and all variations in between, that this becomes meaningless. Example: I might spend time chatting with...

Thanks, I've spotted some more. I might get around to correcting them. :)

I think observing usual typing activity would be problematic, as different tasks require more thought, so would happen more slowly even when relatively less fatigued, and would be much more complex to track. A short typing task about the length of this post, with a document to copy would be OK...

I think the report and any discussion of it can go on this thread.