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I certainly agree that if a clinic does anything useful that affects the person's health in a positive way, it is educating them about PEM, and I mean specifically the delayed significant increase in symptoms and reduction in function that lasts more than a day, not 'symptoms after exertion'...

Discussion on this thread: https://www.s4me.info/threads/concerns-about-the-me-associations-prevalence-figures-for-me-long-covid.38250/#post-528502

I don't think recording the dates and severity of episodes of PEM would count as a PROM of the sort we are used to where questionnaires are filled in at single time points based on recall over the last month or whatever time period specified. Does a daily diary/app record of activity, symptoms...

Getting back to the topic of this thread, has anyone had their two weeks later invitation to fill in the activities questionnaire again? I haven't and I'm sure it's more than 2 weeks.

Oops, thanks, I'll add the link.

Substack article by Christine Pagel Link to Substack post Guest post: A terrible academic paper has fueled renewed anti-vax journalism - it must be retracted A debunk and a plea for retraction from actuary Stuart McDonald _____________________________ The BMJ article criticised here is...

Not a good advertisement for rehab. They should have been able to work out whether the ones who had rehab were improved or worse after rehab, and whether their status before rehab was worse than those who didn't undergo rehab. In other words, surely it's not good enought to just dismiss this...

Thank you Joan.

The discussion is fine, much like here.

Some of us in our 70's have fitbits and smartphones too. Though I confess I probably wouldn't if I didn't have my daughter in her 40's living with me who does all the tedious stuff of buying them for herself, learning how to use them, and then helping me with mine. I think it's not a matter of...

For the record, here's what it says on the website: https://www.gold.ac.uk/careers/work-placements-and-internships/goldsmiths-internships/grip/ ______________ GRIP: Research internships Develop your research skills and your CV over the summer. GRIP is a programme that gives undergraduates six...

I expect Paul Garner will be delighted.

Oh dear. This is dreadful. It would indeed be interesting to know who is behind it. Given some people like Parker and Landmark seek to legitamise their quackery with academic qualifications and laughably poor quality research, I'm guessing it could be Agle herself or someone whose treatment she...

Reminded me of Alice in Wonderland and the bottle labelled 'Drink me'.

If you're doing this indoors, maybe there's a problem of build up of cinnamon smell molecules in the air around you.

It's good that the point about cumulative effect is raised, and the question of how we decide between the options in FUNCAP. My idea on this thread is that we compare which of these most successfully captures the experience of our functional limitations, including the slow recovery and...

Does it say what the treatment they use is?

That's interesting and worth saying. I also don't do lots of the things on the list because of pacing, but to me that means I should rate them as having a serious impact. I do get the bit about cumulative activity. Everything contributes to cumulative effects, so the scoring can only ever be...

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