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While I am all for precision of terms, I don't think changing pacing to rationing adds anything. It's a hard concept to grasp, harder to do. Lately I have been thinking of this musically and trying to think of changing rhythms and rests in music. But it's just a different mental game to...

I've had mixed luck with them. I often use their Toleriane Gentle Hydrating Cleanser, which is almost like washing just with water, so nice! But the moisturizer from the same line gives me a rash! It's so illogical. And as I get further into menopause and my skin gets greasier I feel like I...

Oh, I'm moaning a lot because I'm here, but really not being able to eat fruit with your lips sounds much worse to me than hay fever and snot! My saving grace is that I can eat whatever I want. I just can't breath or touch what ever I want. And I get unreasonably annoyed when people think...

I find this too! The more natural something is the more my body hates it. If only I could live wrapped in plastic! But seriously, vaseline lip balm, pure petroleum jelly is the only thing my lips will tolerate. I don't wear make up anymore, since I don't have the energy to put it on or take...

This is why I just use their bar soap. I use their shampoo sometimes when I need to be clean and am willing to be itchy. But I stay away from body wash.

I use Dove sensitive skin for my soap. Shampoo is a bit more difficult. Cerave Gentle Hydrating Shampoo isn't cleansing enough and leaves me sticky and greasy, but doesn't set off any MCAS reactions. Free and Clear shampoo is so drying it makes my hair like a bird's nest of sticks. I try to...

No mention of whether these children had PEM or not. Maybe if they don't have PEM this could be beneficial. I went to a U of Utah program on long COVID rehab and they specifically mentioned that the 6 minute walk test was not an appropriate measure in long COVID for those with PEM. Do we...

Indeed it is. The philosopher Diane O'Leary has given a talk about this to an EDS group.

Well, according to Aristotle, yes, or to say, that the intellect is part of the soul. Aristotle believed that some faculties like sight and hearing have corresponding bodily organs: eyes and ears. The intellect (the rational part of our mind) is different. it does not have a corresponding...

Here is the correct explanation(s) of dualism, if anyone wants it: From the Stanford Encyclopedia of Philosophy https://plato.stanford.edu/entries/dualism/

These people don't even understand what dualism is. They say they are getting rid of it, while instead they create it.

I think this has to do with the loss of reading ability and increased use of social media.

I'm reading a medical text from 1941, A History of Medical Psychology, by Zilborg and Henry. They give an example in the writings of Cicero, the ancient Roman guy, on early concepts of the mind and psychology. According to Cicero, "A mental disorder is a disease by itself, a disease of the...

Yes, this doesn't seem beyond the realm of possibility. Isn't there a study somewhere that London cabbies have a larger hippocampus due to memorizing the streets of London? I think what's confusing here is how our mind and our brain interact. There's a long tradition in Western philosophy...

This has certainly been the case for me! Mast cell stabilizers and xolair have helped my orthostatic intolerance a bit more than the typical POTS medications and electrolytes. I don't think it's MCAS instead of allergic inflammation. Xolair treats both, as well as asthma and hives. And even...

A lot of the stuff online is quite garbagy and nonsensical. So I go by what my doctor says and what the Bateman Horne says. I seem to remember Dr. Rowe mentioning it in his Living Well with Orthostatic Intolerance, probably in the case study session, although I can't lay hands on my copy just now.

What my immunologist tells me... That's not a particularly satisfying answer, I know. He hasn't explained the pathophysiology part. I know he gave me this diagnosis and that the drugs he tells me are mast cell stabilizers as well as xolair make my symptoms better. I seem to have it too often...

I didn't know I had MCAS for the first 9 years of MCAS. There doesn't seem to be the depth of MCAS knowledge in the ME/CFS community that there is about ME/CFS itself. I do wonder/think if we got together more there would be some useful knowledge exchange.

I take this as a treatment for MCAS. It's one of many potential treatments for MCAS. Whether you would need antihistamines and xolair (or other medications too at the same time) to treat MCAS is very individual, as far as I can tell. I certainly need both since my MCAS is on the severe side...

It was a presentation I saw on youtube years ago. There's no way I'd be able to find it again unfortunately. I just can't agree with your objections to the introduction. The writing looks to me like the standard ways of describing disease severity, what we know about disease physiology and...