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Agreed. Getting a few tubes of blood drawn hurts a little but I know exactly what it feels like, versus the unknown of a fingerstick.

We need a study like this on ME/CFS, to prove the viral assocation. It's a shame it hasn't been done already.

As its main symptom is PEM, ME should be classed under exercise or exertion intolerance. The researchers hired by the CDC concluded there isn't even enough evidence to write guidelines. In an ideal world, this would feed into research funding decisions at the NIH.

We need something better, like a study following a large cohort of pwME.

It's good except for the fact they interviewed Peter White to both-sides it.

I have only seen one study that evaluates the risk of long Covid in people with ME: A preprint called "Severe acute infection and chronic pulmonary disease are risk factors for developing post-COVID-19 conditions 2022" (S4Me thread, preprint). They estimate that people with ME/CFS have 4.69x...

"We're not P-hacking, we swear!"

This paper appears to be more about politics than health.

The common cold Autism Tinnitus

I was curious about how the question about disability is worded, it's explained here: Long COVID Household Pulse Survey

Yes, see "Most Long COVID Cases Started With Mild Symptoms" I personally want as much immunity as possible.

I'd discourage people from posting their anecdotes online for that reason. Let the science speak for itself.

I doubt it. It's for treating shortness of breath.

The WHODAS 2.0 fills a similar role as the SF-36.

Some people feel pressured to use a definition of health that conforms to social biases, where life-threatening, well-understood, stable, visible, and physical conditions are considered more legitimate than their opposites. Others would share my view. My health is obviously poor because I often...

This is the first completed blinded LC treatment trial I recall seeing. We're turning a corner here. 75% reduction in shortness of breath score? Wow. 8 people is too small to be "pivotal." But I believe it's a valuable study. We need a larger trial ASAP. With these impressive results, getting...

It's hard to say because autistic people both have different brains and must expend more effort to function in a society not built for them. I think the cause and course is similar, but that the presentation of autistic vs regular burnout may vary.

This is crucial for developing scales for ME research. It must be multidimensional. We need ways of asking: Can you do this activity always, on good days, or never? Can you do it repeatedly, or do you need time to recover? How long? How incapacitated are you while recovering? How miserable are...

The SF36 is good enough to be trustworthy in a blinded trial. It's generic but that's OK because ME has such a broad impact on our functioning. The other tool we have is the DSQ. The SF-36 uses ability to do tasks as a watermark, and the DSQ uses symptoms. My gut says ability to do activities...

Miscellaneous thoughts on this: I've experienced both autistic burnout and ME. The two are vaguely similar. Autistic burnout consists of reduced mental functioning and fatigability. Emotional symptoms like irritability or depression secondary to stress can occur. Trouble with sensory processing...