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Ironic that the heroine is called Signe then.

It sounds sadistic. But then modern life seems to be full of such stuff. Maybe I should take a look.

They show about a 10-20% higher value in pons and brainstem for ME than controls. That is about as much as one could credibly expect I think, so not trivial. It would make a lot of sense if brainstem was abnormal in ME and one would probably expect it to be bigger rather than smaller. I doubt...

We can believe the patients without believing the explanations. And of course the whole story was very convenient for the then US administration - appearing at just the desired time.

Various things associated with Dr Q Aziz ring the wrong bells for me - several of them, including his departure to the private sector. I know Willie and Nigel well, and their views. The task is to discover what other views are and why there is such antagonism. I have not so far heard back from...

Is he someone who might be interested in listening to ME interests?

My thinking would be to keep the focus on those cases where nutrition becomes a severe enough problem to be life-threatening or at least leading to significant malnutrition. Otherwise the special problem of severe ME gets muddled up with 101 reasons for feeding problems that may or may not be...

Partly to include fluids and electrolytes. Also food and dietary intolerances tend to mean specific allergies or coeliac etc. which I don't think are the central issue. My understanding is that the people who at real risk cannot manage anything.

Yes, that was the reason for making it nutritional intake intolerance - emphasising that this is in the end of just getting nutrition in, not adverse symptoms for specific foods. I think all specific motility mechanisms should be kept out of this at least until someone shows that they are real...

Cystic fibrosis may be an interesting comparison in that this is not the situation for ME, despite some 'experts' trying very hard to give that impression. There are no structural changes that would explain weight loss known to be part of ME. In a way, this is what Peter White should have meant...

I can't follow all the detail of the molecular biology but there seem to be some disingenuous sections in this. They say that although viruses have escaped from labs before (actually tons including the lady who died of smallpox, and SARS-1) this would be the first leak of a new virus. Which does...

As far as I am aware pretty much all infections associated with ME/CFS are intracellular. That applies to all viruses but only a small number of bacteria and 'intermediate' organisms like rickettsia (name has probably changed). The obvious hint is that the relevant immune response is mediated...

I have two caveats to that. Firstly this sounds like a denial that Covid19 was the result of some deliberate genetic engineering. That might indeed be unlikely but it isn't the point. The point is whether sloppy technique at the lab allowed a virus to escape. We have pretty good evidence, as I...

They probably put the low confidence in to cover themselves but this seems to me the only sensible explanation.

it is understandable. My point is that it is a red rag to the bull in charge of the poor patient and a distraction. We want research into problems, all of which are physical, including those to do with the mind. But encouraging patients to think that they should have unreliable tests and...

I think once you get to options like tube feeding, which are what are being denied, the decision on placing a tube has to involve a physician. I may be wrong but I think there is a need to tackle the gastro side.

trouble is you cannot do any research on people without asking them if it is alright to do it. So if the intention was to publish data on cognition you would have to ask the patients to fill in a consent form before doing the multiple Captchas! Of course that might do the job but if it did you...

It would have been better if we were told exactly what tasks PWME were 'worse' on rather than pre-interpreting them in psychological terms. But maybe there is something here that might be of use. I have a sneaking feeling that I would only take seriously the results of a test of cognitive...

There are 1,117 papers on PubMed on this DGBI diagnosis (disorders of gut brain interaction). Most of it is about microbiota affecting the brain. It has been going for five years at least. It looks as if the gastroenterologists have invented a fairy story to allow them to publish rubbish papers...

I have not delved into that. They are being propagated by British gastroenterologists under the auspices of their professional body.