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  1. Hutan

    Scotland Herald: 'Chronic fatigue, 'mass hysteria', and Dr Melvin Ramsay', by Helen McArdle, 2024

    That sounds appealing, but I'm not sure it really works. It is plausible that someone who is a bit stupid and hysterical has convinced themselves that the minor aches and pains that everyone feels is a sign of major illness, and that they should rest in bed. And then when someone opens the...
  2. Hutan

    Scotland Herald: 'Chronic fatigue, 'mass hysteria', and Dr Melvin Ramsay', by Helen McArdle, 2024

    Perhaps junior medical training is still ad hoc in places. Over the past year I have watched a whole lot of doctors, almost all young, give my family member neurological exams. And yes, some of them were really bad. They would move their waggling fingers way too quickly to judge visual fields...
  3. Hutan

    Scotland Herald: 'Chronic fatigue, 'mass hysteria', and Dr Melvin Ramsay', by Helen McArdle, 2024

    It seems as though the majority, or at least a substantial number of the cases he was reporting on there did have long term sequelae. The followup often covers 1 to 2 years after the acute illness. The initiating illness seemed to be mostly an infection with headache, limb pain, varying levels...
  4. Hutan

    George Monbiot on ME/CFS, PACE, BPS and Long Covid

    Some posts have been moved to Psychotherapy including CBT and other counselling - benefits and harms We have deleted some off-topic posts relating to conversion therapy and sexual identification categories. If you want to continue the conversation about this, please go to the dedicated...
  5. Hutan

    Psychotherapy including CBT and other counselling - benefits and harms

    We have deleted some off-topic posts relating to conversion therapy and sexual identification categories. If you want to continue the conversation about this, please go to the dedicated thread. https://www.s4me.info/threads/plans-to-ban-gay-conversion-therapy-uk.4857/
  6. Hutan

    Crowdfunding for David Tuller starts October 1st 2024

    I donated a while back. 5 days left, 25% of the target to go. I appreciate David sticking with us all this time, and not transforming from a 'help' to a 'hindrance' in the way that a number of our prominent advocates seem to do. He's been steadfastly useful. :) Here's to another year.
  7. Hutan

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Some posts discussing possible journalists who could cover the story have been removed as off-topic
  8. Hutan

    Scotland Herald: 'Chronic fatigue, 'mass hysteria', and Dr Melvin Ramsay', by Helen McArdle, 2024

    That is interesting reading. Ramsay is very clear though that there is an actual disease though. He talks of emotional lability with some patients having hysterical weeping (by which I think he means uncontrollable weeping out of proportion to any cause), but he is not supporting the idea that...
  9. Hutan

    News from Austria and Switzerland

    From the link above: Understanding ME/CFS The call “ME/CFS 2024 - Understanding ME/CFS” invited researchers in Vienna who seek to conduct a cutting-edge research project (15 months max.; max funding per project € 100,000) that aim to advance our understanding of etiopathogenesis, diagnostics...
  10. Hutan

    Snakes and ladders: ME/CFS edition

    Yeah, throwing the dice and keeping track of the scores is way too much bother. Instead, people can just say what square they think they are on. And, it's always possible to chop off part of the board. If things are going a bit slow, instead of a target of 100, make it 65.
  11. Hutan

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    WHO Press conference 30 October 2020 So, in 30 October, Garner said that he had begun to improve two weeks ago.
  12. Hutan

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    From a post earlier in the thread, Garner quoted in December He was in Grenada in November. .
  13. Hutan

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Edit to add: September 29 Paul Garner and colleagues describe how a self-help pacing group has helped them manage their long covid
  14. Hutan

    Book: There’s Nothing Wrong With Her by Kate Weinberg

    https://www.unibooks.co.nz/index.php?route=product/product&product_id=180802 Excerpts from a promotional blurb about the book, bolding mine: 'The best thing you'll read this year' KILEY REID 'So beautiful' SARAH JESSICA PARKER 'One of those books I will read again and again' JOJO MOYES 'Moving...
  15. Hutan

    Puffy face

    I should not have been so definitive; I'm surprised at myself for doing so. Very few things about ME/CFS should be said definitively and I've certainly over-stated things here. It is something I experience and I see it in my son. I can feel PEM come on as my eyelids get puffy. I've seen it in...
  16. Hutan

    Book: There’s Nothing Wrong With Her by Kate Weinberg

    There was an interview with Kate Weinberg on New Zealand radio this morning. https://www.rnz.co.nz/national/programmes/saturday/audio/2018961495/kate-weinberg-finding-the-funny-side-of-invisible-illness She notes that she is much better but is not fully recovered. The book might be good, but I...
  17. Hutan

    TANGO2: A Rare but Important Mutation 2024 Walters et al

    That is one explanation for me being tired and pale in the morning.
  18. Hutan

    News from South America

    Prevalence, risk factors, and impact of long COVID in a socially vulnerable community in Brazil: a prospective cohort study, Azambuja et al., 2024
  19. Hutan

    News from Africa

    Long Covid in Nigeria A systematic analysis of neurologic manifestations of Long COVID in Nigeria, 2024, Akase et al.
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