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  1. Hutan

    News from Spain

    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak A low quality study of fibromyalgia from IDIBAPS in Barcelona. It involves body drawing to reveal fibromyalgia subtypes.
  2. Hutan

    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak

    Justyna Świdrak a*, Tamara Rodriguez b, Luciano Polino b, Ana Arias b, Xavier Torres Mata b, Maria V. Sanchez-Vives c a) 1) Institut d’Investigacions Biomèdiques August Pi i Sunyer (IDIBAPS), Barcelona, Spain; 2) Institute of Psychology Polish Academy of Sciences, Warsaw, Poland b)...
  3. Hutan

    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak

    You might think, what is wrong with that blue drawing I used as an example of a 'conflicted body'? It seems that the body did not look feminine enough, with its wide shoulders and narrow hips. And yet, here's an example of a 'Connected Body', which also has wide shoulders and narrow hips...
  4. Hutan

    United Kingdom: ME Association governance issues

    That's such a good point bobbler. Presumably Neil Riley has someone on hand to make sure that he and the rest of his family have a meal to eat in the evening, regardless of whether he has used up all his energy on his daily shower.
  5. Hutan

    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak

    The pictures the women drew are in the Appendix, that bottom of the document. They are interesting to look at. Clearly, the women thought that they were supposed to be marking where they experience pain. The pictures that were grouped into the three subsets are diverse. Some of the women...
  6. Hutan

    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak

    Amazing Perhaps the researchers have divided their fibromyalgia population according to how good the patients are at drawing. Probably as good a subsetting as most others suggested for fibromyalgia. Interoception continues to be a confused but unproductive area of investigation. But still...
  7. Hutan

    Drawing the lines of fibromyalgia: a mixed-methods approach to mapping body image, body schema, and emotions in patient subtypes, 2024, Swidrak

    So, an acknowledgement that the usual "treatments" haven't really been shown to work. The solution - divide the population into subsets so that the right treatment can be provided to each group. Looking for subsets in a sample of 28 people? That's bad enough. Dividing them up according to...
  8. Hutan

    United Kingdom: ME Association governance issues

    Neil Riley manages to add another ME/CFS myth into his non-apology: There's the suggestion that people with ME/CFS are the Type A's, "driven people", with the implicit suggestion that it is our personalities that have contributed to us being sick. (As well as creating an unnecessary...
  9. Hutan

    Association of mRNA COVID-19 vaccination and reductions in Post-COVID Conditions […] in a US prospective cohort of essential workers, 2024, Mak+

    It isn't clear to me how someone who had one or more persistent symptoms prior to the Covid-19 infection would have been dealt with in this study. I don't see anything about excluding them, or asking for only persistent symptoms that are new.
  10. Hutan

    Association of mRNA COVID-19 vaccination and reductions in Post-COVID Conditions […] in a US prospective cohort of essential workers, 2024, Mak+

    So, the study can't answer the question of whether previous infections alter the risk of persistent symptoms.
  11. Hutan

    Association of mRNA COVID-19 vaccination and reductions in Post-COVID Conditions […] in a US prospective cohort of essential workers, 2024, Mak+

    Just an unfortunate pairing of words I think on the HEROES-RECOVER issue - two separate cohorts.
  12. Hutan

    The Concept of ME/CFS, 2024, Edwards

    This post [link] has a comment about a conference presentation by Partinen and a link to the conference report. He seems to have some odd ideas, including that there is an ME personality.
  13. Hutan

    Preprint Beyond pain: Using Unsupervised Machine Learning to Identify Phenotypic Clusters of Small Fiber Neuropathy 2024 Murin et al

    It's certainly interesting and raises many questions for me. Was there some biased selection of the participants? How common is a finding of SFN in people who would rate themselves as healthy? How many of the people in the Type 3 group would meet ME/CFS diagnostic criteria? SFN has been raised...
  14. Hutan

    The persistence of [ME/CFS] after SARS-CoV-2 infection: A systematic review and meta-analysis, 2024, Dehlia et al

    The correspondence is from Nuno Sepúlveda and Francisco Westermeier. The criticisms seem fair. Excerpt: We then re-assessed the 13 studies selected by the PASC-ME/CFS study for the meta- analysis stage but now under the scope of the EUROMENE research protocol (Table 1). We found that all of...
  15. Hutan

    I don’t understand ”subgroups”

    "Sub-groups" have sometimes been used as a convenient "get out of jail free" card by researchers who couldn't find clear signals in their data taken as a whole, but who could find signals (often still in the realms of wishful thinking) if they sliced their (often already small) samples into...
  16. Hutan

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Here's the full tweet from Donald Trump: My favourite reply is * an uncrustable being some sort of junk food pie
  17. Hutan

    What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?, 2024, Kielland et al

    That is a substantially lower participation in the workforce than I have seen suggested before. So, two years after diagnosis, 50% had no wages income, and only 5.7% were earning an income that the authors suggest is roughly indicative of a full-time income.
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