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    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    I had two weeks of bronchitis 31 years ago when I was a robust 33-year-old. It took me two months not to be exhausted from anything. No one needed to tell me how to recover once I was told that a slow recovery was normal. Maybe for some people a program would be needed but I'm not sure why. I...
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    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    you could be right on that. I take what he says to be really just a smokescreen for saying these are essentially psychological even if they have some biological substrates--it's the "to be sure" part of many articles, where you give a nod to the other side but don't really mean it. But perhaps...
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    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    In my experience, there is always a speed-up the last couple of days. But also, on Thursday evening my time, I sent out an update to my donors (750+ this time) that I had reached my goal and if anyone wanted to give this month, they should give to Keith's, and I included the link. I assume that...
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    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    they show pretty immediately on the Berkeley site. I didn't check when I donated to Keith's how quickly it showed up.
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    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    Yes, I also got an unexpected donation and am now at 101%
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    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    But the challenge is that people often have to rock it first with no apparent financial incentives. People are ok with funding Keith and me because we had started rocking the boat before ever seeking funding this way because we believed what we were doing was important to do. It would be hard to...
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    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    I'm sure there are. But applying for funds can itself be a full-time job. And these projects are fairly specific--both Keith and I are engaging in watchdogging bad research in the domains of ME, CFS and MUS. Many funders have broader interests.
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    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    It does suck from both sides of that equation--that is, as one of those who has no options but to seek community support. But it's amazing that people essentially raised around $100,000 this month, between Keith, me, and the $10,000 equipment crowdfunder for Ron Davis.
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    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    "prebuttals"--I always taught writing students to include "prebuttals" of the arguments the other side will raise.
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    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    I am glad we are not cancelling each other out!
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    Weʼre raising £35,000 to Continue Vital ME Research, Keith Geraghty, 2021

    I have it easy in relation to Keith. I can just post something when I want. Keith has to get it into a form that someone will approve for their publication. Working with news organizations is somewhere in between. I sometimes will engage in the peer review process but mostly I don't have the...
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    Crowdfunding: Trial by Error [David Tuller] Reporting on ME, CFS, ME/CFS, "medically unexplained symptoms," and related stuff, Spring 2021

    And I've promoted Keith's and donated as well. very important. we're doing complementary things.
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    Mindfulness-Based Program Plus Amygdala and Insula Retraining for the Treatment of Women with Fibromyalgia: A Pilot RCT, 2021, Sanabria-Mazo et al

    I don't think it's ok to allow a title like that to pass peer review. Although I gather that's what he calls the program, so in that sense it's the name of the training even though it has nothing to do with the science itself.
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    Mindfulness-Based Program Plus Amygdala and Insula Retraining for the Treatment of Women with Fibromyalgia: A Pilot RCT, 2021, Sanabria-Mazo et al

    The idea that someone would refer to a trial as involving "amygdala and insula retraining" seems pretty ridiculous. I mean, whatever is happening, why call it that when you have no idea?
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    Trial By Error: Why Have Experts in MUS Spent Ten Years Mis-Citing a Study about Costs to the NHS? David Tuller

    My feeling about Bermingham et al is that it really was likely unintentional and then just kept being repeated as a commonly accepted "fact" that no one had to bother to double-check. I don't think all the misquotations were intentional. However, because they all believed the same thing, it was...
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