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Update. A new news article on this syndrome: https://www.cbc.ca/news/canada/havana-syndrome-neurotoxin-enqu-te-1.5288609

Explained so plainly and clearly that you'd have to force your head in the sand not to understand the implications.

I particularly appreciate the section acknowledging that finding yourself in the presence of someone who listens and who presents as compassionate is not the same as someone who is without an agenda or bias as to why you are ill or what to do about it. The BPS position has developed skill...

Old thread but I was perusing it and looking at the paper. For reasons not clear to me seems there is currently some interest in viewing. See Here Yes they are very clueless. And they remain so despite regular contact with this illness group. It's clear that what they lack is any firm...

I didn't pick up on that point. I'm not completely certain but I don't think we need permits here in Canada (or at least in Toronto) to demonstrate. The age of internet and it's consequences is a big subject and I have no ability to consider it's implications. Valid concerns. Maybe there...

No argument from me on that. I did notice that he is speaking in parliament but I tend to keep my posts rather brief as I can't manage long posts. I think the points he made are well taken and I did suggest that this needs to be widely disseminated. People need to care. I am one of the...

If only this were more widely known. The article places blame on Big Pharma (no problem there) but you could replace BPh with Insurance and the same thing applies. “It is simply no longer possible to believe much of the clinical research that is published, or to rely on the judgment of...

They don't need a journalist they need Rumpelstiltskin. In this case he'd have to spin horse manure into gold though.

Really good article. Several salvos hit at the goopy centre of pseudo- (I can't even bring myself to write scientific in this context) beliefs. I just can't fathom (beyond all the money) why Paltrow would put forward all this clap-trap and others would believe it.

? @leokitten ?

Thanks, @Willow I didn't notice that.

Is there anyone who can give a condensed highlights? The broadcast is 4 hours long.

To some extent I think they gauge interest by number of clicks. I noticed that the news story I linked to on the CBC site did not remain up very long. More people will see the short descriptor of the story if that story has previously been clicked on (or so I think that has an affect). For...

Inevitably it's the questions they don't ask that are relevant to our situation and illness.

This link may not be available outside Canada but the radio programme is here: https://www.cbc.ca/player/play/1591586371765 Also, Rebecca Ugolini is on twitter: @RebeccaUgolini I think generally people unfamiliar with the true nature of ME really don't understand why calling it chronic...

I think these guys urgently need to attend an Unblinded Researcher's Anonymous meeting to rid them of this addiction. I expect to hear from them when they get to steps 8 and 9.

Perhaps Deutche Gesellshaft could recommend DT on Virology blog as well for those who speak english. I realise it's not a good situation in Germany for ME sufferers but at the moment I'm feeling a little bouyed overall that the thin edge of the wedge has been inserted and pressure is cracking...

Wow, those are treasures (of sorts). Although not scientific research per se would these be useful additions to the science library? @Woolie

This treatment modality says much more about Dr Fam and nothing at all about ME also known as cfs. It goes beyond patronising the patient to IMO a level of dislike for the people he wants so much to 'help' (by bullying them).

Just wanted to add that there was some good coverage in national news via the Canadian broadcasting Corp (CBC): https://www.cbc.ca/news/canada/montreal/myalgic-encephalomyelitis-canada-icancme-1.5257415