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I have to admit this Dr with ME seems (or so it feels) like the tip of the iceberg in that all of a sudden PwME are everywhere sharing their story. Where were they last year -- 5 years ago etc? Is there an epidemic occurring?

The description of cfs is short but very on point. Good to see they understand.

Is it possible to paste a contact for those not connected to face book?

It just occurred to me to post what TED says about TED talks. The link provides their rules for giving a talk: http://storage.ted.com/tedx/manuals/tedx_content_guidelines.pdf ETA: clearly TEDx Bristol has been co-opted by people who know squat about science (or don't care).

Oooo, I've got this one. Cruella de Ville

Or correlating the incidence of "chronic fatigue" with depression in teens. High incidence of both and prevalence of correlation. Betting a jar of (invisible) magic beans.

More info: http://www.exeter.ac.uk/mooddisorders/thinktank/

There are ME advocates trying to get Ampligen approved for use in Canada...

Just a short note you might not have considered. I don't know how long you've been ill but whatever you have learned from experience about your symptoms you will have to relearn (or simply adjust). What you know now about your ME will change over time. I think this is true for everyone to...

That's an interesting twist. But then I noticed that AfME were partners of some sort (sorry already can't remember specifics) on the Unrest site. Holgate & Chowdhury trying to shine up their image in the ME community. I'm inclined to not be in a great hurry to be forgiving of people who have...

TO my understanding Neoliberal means corporate or technocratic rule. Corporations co-opted Milton Friedman's new liberalism for their own benefit and use it with an Orwellian meaning.

They're teenagers. The very definition of anxiety and volatile mood. :rolleyes:

I alternate between getting only 6 hours sleep which leaves me completely unable to manage my usual limited functioning and 14 hours of sleep which if I manage that for several weeks/months allows something more like a best baseline functioning which I do more at my peril. Even on my good days...

Yes, thanks @Wonko This is my bad. I see they are visible in the welcome section but did not when looking. Poorly functioning at the moment.

Thank you for that wise ruling. There is parsing each word for the literal meaning of a thing and then there is the intent of a rule. It is important to consider the concerns of the people posting over and legalistic rendering of a rule. Wording of any rules can only be a guide not an...

Hi @markiemark I found this not long ago: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4425030/ Don't know if it would be of any use. There are lots of references to troll through at the end.

Perhaps we can give the article lots of traffic.

Can't see that anyone has done that here. I think we're all on the same page vis a vis EC.

The coeliac plexus is for the rest of us --the solar plexus and one of the four Perrin points. The other three are: left breast area where two sensory nerves join mid point of the spine top of head...

Yes, I don't know about the redness but I have a chronic cough and often sore throat, tender glands. Although I sometimes wonder if this is due to MACS as opposed to ME proper. It's worse at the moment and it's been an utterly glorious fall and I've been laying on a lounge chair in the...