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  1. Snowdrop

    PEM is associated with greater symptom burden and psychological distress in patients ... with CFS (2019) May, Fletcher, Klimas et al.

    Well there is still a fundamental and glaring error showing that they were not overly careful with checking their work: That comes off as just sloppy. Also, and I know I am very cranky about this. I don't give a rats behind if the work they did here was brilliant and to be lauded. All they...
  2. Snowdrop

    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Unfortunately from what Ive seen it's a real coin toss with celebrity endorsements. It can go rather badly if they start going off script and endorsing non science and if they have their own story to tell their narrative while valid may not be what works best for advocacy of a large illness...
  3. Snowdrop

    Why is ME/CFS so neglected?

    In an effort to boost good research results for the little that gets funded I'd start by educating researchers. It seems (bizarrely) that they still do not know how to select for a robust cohort that represent more than moderately fatigued. Helping researchers to stop doing all the things we...
  4. Snowdrop

    Ensuring IAPT Makes A Real-World Difference - Scott: Dec 2019

    Do you know, is there anything very precisely different that separates the sausage machine variety from 'proper' CBT. I expect training would be one feature but how do they view this training or other differences so as to cause 'proper' CBT to be effective? Or to put it differently perhaps...
  5. Snowdrop

    Genome-wide analysis identifies molecular systems and 149 genetic loci associated with income, 2019, Hill et al

    It's late here for me so to answer really briefly on my part. I don't know much about genetic research but it seems to me that searching for this kind of link is not at all the same as finding a link to a genetic disease. With a GD I think you would get pretty immediate feedback if your...
  6. Snowdrop

    Genome-wide analysis identifies molecular systems and 149 genetic loci associated with income, 2019, Hill et al

    The idea that there is a "Social, Genetic and Developmental Psychiatry" sub discipline horrifies me somewhat. (Stuart Ritchie) Those three things seem benign enough until put in the hands of ideologists with a psych degree. The actual biomedical expertise (sequencing) seems to have come from...
  7. Snowdrop

    News from Scandinavia

    The BPS cabal would like very much to spread this misinformation. I suspect that in the past some bio research was greeted with perhaps less scepticism but that certainly is not the current climate of the social media active among us. It's just a convenient point score in saying that as it...
  8. Snowdrop

    News from Scandinavia

    Well, as we here all know -- there is nothing quite like personal experience of ME and trying to expend energy we don't have to clear up any misconception in that regard (what PEM is and how it affects our functioning). Maybe he'd accept a blood transfusion from one of us? Actually now I...
  9. Snowdrop

    News from Scandinavia

    This can explain so much of why the cabal believe they're on to something. Vague general mild symptoms and poof presto you are healed. Start the gravy train.
  10. Snowdrop

    The country that closed its psychiatric hospitals

    Interesting. I missed that point. I would have thought that all the time spent with the patient added up to more. Maybe Italy could get interested in exporting consultants to other countries on how to save money this way.
  11. Snowdrop

    Reflections on advocacy

    There may be but there will be no access to the for many unless there is data to support their use. If there were better management strategies in place then many could benefit from better QoL and perhaps be more able to engage in the much needed advocacy. Perhaps getting drug manufacturers...
  12. Snowdrop

    Reflections on advocacy

    Similar point to Wilhelmina. You can tell people things. They may even be true but the person hearing must first believe that it is in fact true. So far I think nobody much takes it seriously. When my kids were in school I expect I would have got a similar response from most parents I knew...
  13. Snowdrop

    The country that closed its psychiatric hospitals

    Not just Britain. Famously, at least locally, a man was tasered to death at Toronto International Airport because he was agitated. He was frightened, alone and couldn't speak English. Just in my opinion but all of this horror stems from a simple axiom gone to far. Time is money. There is...
  14. Snowdrop

    Reflections on advocacy

    In terms of advocacy I'd like for there to be much more robust data just for the symptomatic relief of symptoms. So many of us as we come to being ill try to invent our own cure (firstly) and then symptomatic relief. It takes up so much time, energy and resources that could be better channeled...
  15. Snowdrop

    ..Understanding the Role of Psychological Processes in Disease Development, Maintenance, and Treatment: The 3P-Disease Model, 2019, Wright et al

    I should probably also point out that the focus on the purely psychological leaves out the very real issue of not only the social but the biological. Many social factors that contribute to illness when ameliorated are more preventative in nature. All of illness is biological as we well know...
  16. Snowdrop

    ..Understanding the Role of Psychological Processes in Disease Development, Maintenance, and Treatment: The 3P-Disease Model, 2019, Wright et al

    The lack of awareness of psychologists can be breathtaking. It's perfectly reasonable to provide information and promote healthy behaviours. No problem there. But all of the promoting I've seen is rather tainted with the idea of bootstrap moralising. If you want people to eat well pay them a...
  17. Snowdrop

    Statnews - BMJ should retract flawed research paper on chronic fatigue syndrome -STAT - David Tuller Dec 2019

    This is how it seems to me. Of course there has always been this type around but now it seems like they are becoming as common as toxic plastic washing up on the beach. It's disheartening to see such a tsunami of human corruption. I admire those that are able and do fight the good fight.
  18. Snowdrop

    Statnews - BMJ should retract flawed research paper on chronic fatigue syndrome -STAT - David Tuller Dec 2019

    Excellent. More clear and precise writing hitting the target. I can't help but wonder when reading articles like this one as to what type and how much pressure there is from some outside source to keep this particular area of research 'viable'. And not to be all conspiracy minded but exactly...
  19. Snowdrop

    Conceptualising illness and disease: reflections on Sharpe and Greco (2019) Wilshire and Ward

    It's been ages since I've had any kind of Christmas Wish. I do wish this Christmas for this article to be widely shared, considered/pondered/talked about among the medical/research establishment. I want it to go on tour. (now just realising there are no fire works emojis)
  20. Snowdrop

    Assessment and management of recurrent abdominal pain in the emergency department, 2019, Daniels et al

    The underlying premise implicit in the above abstract (in more general terms than just abdominal pain) is that there is a large category of people who respond to life's difficulties with any of a host of physical symptoms that are not in fact any real pathology as understood in ordinary medical...
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