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What's in it for Cochrane to do this I wonder?

Just for fun I'm going to guess August 23rd as the date.

Would like to see Canada involved. Maybe through Women's College Hospital's environmental illness unit in Toronto. Maybe through UBC at the complex chronic disease program. Though I think both those institutions still have some learning to do re: ME. @Action CIND

Another tour de force. It's nice to see comments now from people who I don't actually know (online). I hope the news of the real PACE debacle continues to reach new people and hopefully that will include more scientists who will now finally look at the published research.

Marathon runners and other athletes get muscle pain when they push themselves -- Is that tissue damage? Because if not then I don't see why other people cannot experience real pain of the same kind just driven by some malfunctioning part of the system.

It's fine for him to share his experience of having ME. But the article reads as prescriptive for others and that's a problem. And it is patronising. It doesn't take into account a very large difference in the circumstances and often differing priorities of other people. Just do what I do and...

@Sarah94 Here's the way I see it. You can only die of a physiological cause. That is the only way to die. Where things get fudged is when for example someone has a weak heart and they get a really terrifying fright. I think in this case you can be scared to death but the cause of death is...

This conversation has made me notice that I actually have more steps when feeling worse than usual. I expect this is a result of when I'm feeling more ill I actually move more -- not walking but agitated movement because I'm uncomfortable. I often wondered (for like a nanosecond) why this...

Just like Camelford. No need to bother testing these youngsters for ingested/inhaled toxins. Couldn't be that. Just because that's not an interesting story. Better the pixie-fairy dust story.

Thanks @mango I don't have the wherewithal to read or comment further atm. Maybe later.

I'd like to hear from them why they find emotions are so important to physical health. People have been having them for quite a long time. And what does it mean if you don't succumb to poor health, that your emotions are healthy? That's kind of self-evidently not true. Why has medicine...

Would be nice to see S4ME mentioned among recommendations and resources.

If the writers have indeed engaged in double speak of the sort posted then it's beginning to sound like end stage cancer to me with regards to the logical conclusion of the so called 'experts' finally becoming the anti-scientists. (yes, I was thinking of religious imagery as I wrote it with a...

@Peter Thanks for the response. It probably seemed obvious but I have such a short memory sometimes I loose track of things in a thread and need the extra help. I agree with your points. Healthy people often have an odd sense of what constitutes (fill in any number of concepts to do with...

Cause health are big on some fancy philosophising leading to some complex sounding theorising on illness. I see a few problems. They can theorise all they want at the end of the day what the ill person wants is a cure or a treatment that is effective. The needs of the patient are pragmatic...

Hi @Peter Can you quote that last sentence for us?

As I see it, all you have to do is put some random perfectly healthy person into this situation of living to find out how utterly difficult it makes it for people to function after a time.

This paper does seem to take at least a small step back from fatigue/low mood=ME/cfs. I'd like to think that in private a journal editor or two has suggested they step up their game with regard to how they conduct their research. If so, there is a long journey ahead. Baby steps. Just to...

I'm sure there is more to say on the subject of publishers and I don't know just how many there are but of two of the largest science publishers AAAS and Nature only one publishes a journal of psychiatry. Nature, based in the UK publishes Molecular Psychiatry. As far as I can tell the American...

Thanks @rvallee appreciate your efforts. I think your further explanation clarifies things for me. Til nexttime . . .