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They have my data already. My physical location and my ME severity prevent me from participating in most research so contributing my dna data is one of the few things I can do. I would like to encourage everybody here with dna data to consider contributing their data, too, obviously after...

First reaction: :wtf::banghead::mad::cry::sick::arghh::bawling: Second thought: If they managed to get Work & Income off some patients' backs they may actually have done some good after all.

Thanks @BeautifulDay for sharing with us the results of what must have been an awful lot of hard work. I do hope somebody picks up on it and incorporates it into a larger study. Do you happen to know if any of the teams currently hunting for ME-predisposing snps are looking at snp combinations...

For example what health effects, if any, being a chimera might have. Chimera meaning having different DNA (ordinary DNA, not miDNA, I believe) in different tissues. It definitely isn't very helpful when trying to prove you're the mother of your own children...

Personality types turn up in the most unexpected places, in our local farming paper for example. In summary the study reported on showed that curiosity about a new object is more likely to occur if it is directly preceded by some nice food than by standing out in the rain. Not only are we...

This is almost the most interesting part of the study: a chronically fatigued non-ME control group (CF/nonME). What an excellent idea! If only more studies would do this. And the result that the CF/nonME patients were close to healthy controls gives weight to our claims that CF and ME are very...

This looks like a useful device even if only half the hype is true. https://www.sciencealert.com/scientists-have-figured-out-a-way-to-look-inside-the-entire-human-body-at-once

Same problem here. Plus I have haemochromatosis which means they regularly have to get about half a litre of blood out of me in one go. This is becoming more and more difficult. My veins are actually very good, or so I'm told, but the blood seems to clog up the needles. Here's a list of tips...

Otago Daily Times, 16 Nov 2018. Article mentions other winners but here are the bits concerning Prof Tate. Motor Neurone and ME in the same family – what very bad luck! I understand he'll be speaking in Dunedin on 24 November, at a MEISS meeting. If anybody is going, please do report back...

Oh @Hutan, how exasperating that must have been for you to sit and listen through that! But thank you for reporting and venting. Your venting makes a lot more sense than any of that earnest personality type babble. And if the person who challenged that personality type babble at the meeting is...

Hmmm, confusing. I do have an annual seasonal slump when I crash more easily and am overall more sluggish and malaise-ish but the timing is different from the others here. For me it's the winter to spring transition (starting late August/early September, Southern hemisphere). In the past I...

Aren't there some theories that in ME (or was it POTS?) the sympathetic-parasympathetic nervous system balance is skewed toward the sympathetic? And that stimulating the vagus nerve stimulates the parasympathetic side and so may help to re-balance? Or not. I don't recall any hard science on any...

Must remember to try that quote. Probably more effective than my usual strategy of launching into a lengthy explanation of aerobic and anaerobic and cellular energy etc etc which always results in the listener's eyes glazing over within 30 seconds :D Nice and clear article. Edited: spelling

Not sure whether to laugh or to cry after reading this thread. Glad to hear there's some sense in the video (haven't watched it myself) because the website and blog are a right old misleading muddle of ignorance, patient-blaming and false promises. Probably all unintentional but that doesn't...

Not sure anymore what I based it on but my interpretation was that they were looking for any mutation that could significantly inhibit IDO2 because it's the inhibition of IDO2 that sets the scene for the trap, not what specific mutation “broke” IDO2 in the first place, just the fact that it is...

Another effect mentioned in the talks was that kynurenine could end up too low and that could also lead to all sorts of downstream symptoms, for example kynurenine is a precursor of NAD+.

Sadly the 'viral reprieve' experience is not universal. I have only caught a single virus since falling ill, not sure if it was a bad cold or a mild flu. Anyway, it didn't make me feel any better and, worse, it tripped me from very mild to moderate-severe. Now avoiding sniffling and coughing...

Exactly the same here. Then, after a couple of years or so, the fainting stopped and the postural orthostatic tachycardia started. If OI and low blood volume are linked, what about POTS and low blood volume? I'm speculating that I first got low blood volume, this lead to OI, which finally...

She is and she has :thumbsup:

Thanks for the summary @Hutan. Sounds like it was vintage Ros. Ros told me the very same thing more than 2 years ago. Here's hoping (though I don't have much hope of meeting any of them anytime soon, our local rural practice seems to attract GPs at the other end of their careers).