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How did you get on? In my experience reactions can depend on where on the body you test. I react to wool (lanolin?) if it touches my neck or wrist but I can wear woollen socks no problem. Similar with metals, some areas react worse than others. Much like @Arnie Pye I got my ears pierced and some...

Will this be translated into English? At least the bit about the different time courses should be more widely available as there's been so little research into this anywhere (section 4, starts on page 19). Very interesting reading. If anyone just wants to look at the graphs...

Was too long to read for me but it's possible to listen to it as a podcast, about 51min, which I did. Pretty good.

I borrowed one for a while. With warm hands - a rare event - my oxygen levels were always 98-100%. With cold hands - most of the time - they were below 93% or thereabouts, I don't know how low exactly because that's when the alarm buzzer went off at intolerable volume and I had to switch the...

The infuriating thing is that nobody knows. It's scandalous that nobody knows, that there hasn't been anywhere near enough research to be able to make even just an educated guess. It's not as if post-viral syndromes are rare, there's been plenty of opportunity to study them. Yet almost nobody...

Yeah, I have been wondering about that for a while. Could explain the seemingly non-viral onset cases. Presumably the old corona viruses, just like the current one, can also cause asymptomatic or very mild disease that would go unnoticed outside a pandemic. All you'd register would be that...

Have now read the paper (https://sci-hub.se/10.1016/j.jpsychores.2017.10.010). Despite being loaded with BPS authors it doesn't actually lead to tearing your hair out - if you can overlook the fact that they're studying post-exertional fatigue and that it's not clear if the participants also...

For most basic purposes a sleep tracker is overkill, I agree. But I do see a couple of uses for them if or when they become good enough to provide detailed and, most importantly, accurate data. For now they aren't up to the task so the following points are hypothetical. At the individual...

The Spinoff (17/1/21): Some advice for ‘long Covid’ sufferers, from the chronic fatigue community Nothing new here, much as the title says, but a delightful gremlin with a sense of humour has snuck in: If you're the writer and you're reading this, please don't change it, some typos deserve to...

Terry's nails lunulas disappeared except for on thumbs but those are slowly shrinking now, too mild vertical ridges occasionally Beau's lines on one or two fingers which grow out again prone to white spots on fingernails (leukonychia, more likely trauma than mineral deficiency) not fingernails...

A while ago I did a trial of 3 devices to measure sleep, wearing all 3 at the same time: 1) a Fitbit wrist monitor (quite an old one, probably one of the first to monitor sleep at all) 2) a Polar wrist monitor (about 2 years old) 3) an Oura ring (latest version) I was interested in seeing if...

Otago Daily Times (14/1/21): Post-viral illness thrust centre stage Nothing new here, just a quite sensible opinion piece looking at the similarities between long Covid and ME and at the differences in how they're being treated or, in the case of ME, have been treated/maligned/ignored. Still...

Since the editors of this Long Covid page seem to have a reasonably good understanding of ME I went looking to see what Physiopedia had on ME/CFS. Lets put it this way: let's hope none of their tens of thousands of followers find this page any time soon. If there are any physiotherapists or...

I expect there's vigilant monitoring of side effects going on but 1) are they also being categorised and analysed to see if there are certain side effects turning up more frequently in certain groups, be that age or disease like autoimmunity? 2) since it's not likely all groups were well...

New (at least to me) biomedical researchers always welcome! Muscle wasting? In the bedbound, sure. Though whether it's a consequence of the disease or of being immobile is another question. But in general, beyond what you'd expect from being sedentary, is muscle wasting a thing in ME? My own...

I think they focus on diagnostic categories because this looks to be a review aimed at physiotherapists wanting to make practical treatment decisions based on evidence. It's very reasonable to suspect that people with and without PEM may react differently to some treatments and therefore to look...

This underlines the value of good, open-minded clinician researchers who also happen to see a representative group of patients. I fear they're an uncommon species, at least in ME. Some of our clinician researchers have some rather fixed ideas. Others may be open-minded but probably see a...

This seems to be where we're at with ME: the fatigue meme. How exactly did they do this? I could find plenty of praise for them online for doing so but very little on how they did it. And how could their methods be adapted to ME? Or would that not be possible because with ME we still have less...

Just alerting Australians to this post in the News from NZ thread. The conference is largely an Australian thing. More at original post News from New Zealand and the Pacific Islands

For the Big Ideas Forum: http://www.chfsummit.com.au/ehome/518286/bigideasforum/ But there are several "panel discussions with live Q & A" after the various live streams, for registered participants only presumably. Not sure how I feel about the term consumer in this context but apart from...