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Yeah, I was wondering about that, too. I used to be completely impervious to motion sickness, not any more. The interesting thing is that the very mechanisms the sleep study hypothesises cause the benefits of rocking to healthy people's sleep are the same mechanisms thought to cause motion...

Maybe we should all try to sleep in a hammock, or a fancy automated rocking bed once they become more widely available (the latter most likely only an option for millionaires). I did use to sleep particularly well on trains, back in the days I could still travel... See this small study on...

I had complete sleep inversion for about 6 months at one stage. Supremely infuriating! Attacked it with 3 things: Light therapy early in the day. Melatonin in the evening and at night. Rest, rest, rest. I don't know which, if any, of the above made the difference but eventually my body clock...

This may at least partly explain the patchy results in FMT trials: not all poo is created equal. Science Alert article: There Are People Amongst Us Whose 'Super Poop' Can Treat Serious Diseases...

Ferritin can be temporarily raised due to other reasons such as inflammation so a single elevated test rarely rings any alarm bells unless it's totally off the scale high. Usually they just retest a bit later and if that test is fine there's unlikely to be a problem. Wow, that doctor was on to...

From the press release: https://mcgill.ca/newsroom/channels/news/men-and-women-remember-pain-differently-293050 Based on this article: Male-Specific Conditioned Pain Hypersensitivity in Mice and Humans Loren J. Martin et al, Published: January 10, 2019...

Interesting reflections @Sly Saint! Had to think about that. My first reaction as a housebounder was that it's us at the severe end who get ignored, and that the mild and moderate ones get most of the attention. Then I realised that my view was based on my own experience of being unable to...

In New Zealand – different countries have different rules – if you only have haemochromatosis but are otherwise healthy your blood can be used as a blood donation. At the time of my haemochromatosis diagnosis I was still (wrongly) thought to have MS, so my blood was originally rejected because...

Especially since it's cheap and easy to do a basic screen. Most people here should have been tested for iron levels because uncontrolled haemochromatosis is one of the conditions that should be excluded before making an ME/CFS diagnosis. But if your doctor hasn't done at least a standard iron...

From the paper: This is intriguing. Does anyone know what “concepts of Precision Medicine with appropriate statistical analysis” means, exactly? And if it's any good at overcoming the limitations of minute sample sizes (which ME research seems to be full of)?

It's worth checking out the reference given for the circadian issues. Have only scanned it so far; it's a very long article but looks interesting though not directly addressing ME. Sounds like there are several different 'clocks' in our body, including in immune cells. So it's not just about...

I'm pleased somebody is trying to look at different onset patterns and course of the illness. However I'm dubious about the quality of the data obtained because: One, they use Fukuda. Two, 97% of the patients have co-morbidities, many with significant symptom overlap with ME/CFS. Three...

That's my guess, too. I have periods when, for no identifiable reason whatsoever, I need to breathe faster than normal. At other times, like now, sitting with my feet up in front of the computer, my breathing rate is a sloooow 4 breaths/minutes. And sometimes I sort of forget to breathe...

But there are members on this forum who endorse every word. I for one am putting my hand up.:emoji_hand_splayed: Thanks @Trish. Superbly formulated letter. :emoji_clap::emoji_clap::emoji_clap:

There is an option for that, sort of. Do as @Barry suggested and tick "Other", then email them your opinion "Doctors need to understand the importance of pacing, and provide patient education and support."

:emoji_thinking:Hmm... looks like this study would exclude all of us who experience PEM as a result of talking on the phone.

Thanks for the excellent suggestion, which I duly followed. This is what I emailed them as my explanation for choosing 'other' as one of my answers: Regarding the quick survey “What do you consider are the most important three things that a GP needs to know about ME/CFS?”: The single most...

Highlighting this thread about the Australian NHMRC ME/CFS advisory committee draft report currently open to submissions – from anyone, not just Australians. Submissions close 18 February 2019 (Australian time). Important for Kiwis as there is a very good chance that whatever the Australians...

Just giving this thread a bump. Only a little more than a month to go before the deadline. Submissions close 18 February 2019 (Australian time). Anyone, not just Australians, can submit. If you possibly can, please make the effort to make a submission, even if only a partial one. Our advocates...

Congratulations @Michiel Tack, you have produced the first severity scale that fits my condition and would have done so at any of the stages of ME I've been through to date. Like @Trish my different symptom types vary widely in severity and in the disability they cause. Typically with the other...