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Updated donation page for Prof Tate's team's research 2020-2021. They do need more money to complete their planned programme. I'm a bit lukewarm on B and C but A sounds interesting. https://alumni.otago.ac.nz/donate/myalgic-encephalomyelitis

Re cognitive testing, there's a whole suite of tests available here: https://www.cambridgebrainsciences.com/science/tasks The individual tasks all have a button saying 'Start here for free' but it doesn't work for me, probably some setting on my computer, so haven't been able to test any.

Plus, it would be very interesting to know what other "plasma/serum-swap" experiments have been done in other diseases, and with what results. What would be good search terms to use to find such studies, if they exist? "Plasma swap" and "serum swap" don't bring up much of interest. Could there...

Found it on iTunes by searching for "foreldrerådet".

Even with my not exactly brilliant ability to follow spoken Swedish, this is a powerful and very moving video. Part of it describes very severe ME - this deserves to be subtitled for a wider audience. The other part is about the failure - refusal may be a better word - of the Swedish health...

Good summary @Hutan. It's available on-demand here: https://www.rnz.co.nz/national/programmes/ninetonoon/audio/2018749885/sarah-ramey-women-with-a-mystery-illness Note that the ME link in the programme notes goes to M.E.Awareness.nz :thumbsup:

Posting with a touch of "survivor's guilt" (or whatever the correct term is for being able to feel safe when so many of you are feeling anything but). NZ has done it!!! We've won the first battle: virus gone :emoji_fingers_crossed::emoji_fingers_crossed::emoji_fingers_crossed: Remaining...

@Anna H, sorry to hear you and your mother are ill. Thought you and the other Swedes here might enjoy this Danish opinion piece. Google translate struggled with the last bit, should be something like 'before the Swedes change direction and rejoin Europe'...

Overly broad inclusion criteria are an important issue that needs to be highlighted - and Nina Steinkopf does this well here - but, as I've been harping on about in the LP study thread, we need to be wary of Wyller and his likes becoming more crafty. The claim for the proposed LP study is that...

Also an interesting approach to overcoming the problems with the accuracy of antibody testing. More at: https://www.rnz.co.nz/news/national/417821/new-covid-19-antibody-blood-test-to-check-for-undetected-cases-in-southern-region

There've been some who have likened our exercise intolerance to the sort of allergy that you treat with desensitisation therapy - so GET would be a sort of desensitisation therapy for us. Once again I can't remember who said that - can somebody please give me my memory back! - but likely it was...

There've been a few interviews here recently with some Swedish health official (can't recall the name) telling us that NZ is doing it all wrong. This is how "wrong" things are: https://www.rnz.co.nz/news/national/417812/covid-19-live-updates-from-nz-and-around-the-world-on-29-may

Cort has done a write up on this and the author (Mackay) was responding to some questions in the comments. https://www.healthrising.org/blog/2020/05/27/neuroinflammatory-paradigm-chronic-fatigue-me-cfs/

This is actually quite good, especially for something produced by somebody who, presumably, has only been digging into the whole PVFS/ME/CFS murky mess for a few weeks. His previous video did have a few typical "beginner's mistakes", but this second one is much better, showing somebody who's a...

Seriously impressive work @Michiel Tack. Thank you so much!

There's also this thread on non-allergic rhinitis: https://www.s4me.info/threads/non-allergic-rhinitis.8163/

The Stuffy Nose Syndrome seems to have struck a chord so here are the articles cited in Craddock's presentation - some are quite dated - about rhinitis in ME. Have only skimmed the abstracts but it looks like rhinitis is a Baraniuk interest that hasn't really caught on. He appears to view it...

The long and the short of this review is that nobody's been interested enough in us to even figure out how many of us there might be (in Europe). No surprises there. Sigh. One of the three - three! - studies that made it into the review was done in Iceland in 2001 so didn't include any of the...

Started to watch the first speaker but found all the general functional and integrative medicine stuff less than interesting. Skipped forward to speaker #4 (1:54:52) "Travis Craddock, Ph.D. - Director of the Clinical Systems Biology Group The Potential Role of Ocular and Otolaryngological Mucus...

This is interesting given that the main argument against lockdown is an economic one. At least in Scandianavian culture it may be a lot less relevant than commonly thought. My take: Lockdown requirements don't make much difference to most people's behaviour, they just stay home anyway because...