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Thank heaven for that! Can you imagine the damage this crowd could do with the kind of funding venture capital could throw at them? I sincerely hope the venture vultures come to the conclusion they don't want their brand associated with such very low quality research & products.

That's all we need - venture vultures feeding the trolls.

I need another option, I'm afraid. Yes in the run up prior to developing ME and then in the early stages. Cutting sugar out seemed to help significantly. We have a thread here somewhere where we discussed the frequent need to pass water & whether this is another symptom of PEM. It certainly...

I see what they're saying and agree they seem to assume worsening of symptoms during the course of treatment is psychological rather than due to an exacerbation of physical symptoms because the patient is being instructed to ignore important warning signs. I'm trying to raise a different point...

I would like to suggest someone ask them about how they plan to.cope with harm caused to either mental or physical health caused by undergoing this process. The very nature of the process implies the person is capable of controlling their symptoms & if they can't it's because they are doing it...

I first misunderstood and thought "yep, that's bad, glad we've moved on!". Then I saw the date! :mad: This idea - I mean the author's & those with similar ideas not @strategist - should be called out for what it is: taunting the patient. This goes far beyond making sweeping statements about...

While he is of course correct, I think his tone comes across as being a point scoring smart**** in this tweet. The point being made is, I feel, that claimants struggle to receive benefits they are entitled to and that the system is unfairly designed around a "Computer says no!" approach.

I simply cannot express how angry this makes me and it has nothing to do with ME. I had someone very close to me, the person I felt closest to in the world at the time, take their ongoing symptoms lightly in the mistaken belief that although it hurt a fair bit there was no major underlying...

They do indeed have lower limits. I have several type 1 diabetics in my family. The UK current advice for diabetics seems to be 4mmol/l is the lowest level blood sugars should drop to then before a meal up to 7mmol/l. It does make a difference if you're an adult or a child - at certain times...

Yep I think this is precisely what's happening. I was diagnosed when the whole ME as caused or perpetuated by candida was all the rage. So I have spent a lot of time and energy working out my diet. Strict, supervised sugar free diets etc made no difference to my ME but were miraculous in...

I found the video posted by @Ryan31337 discussing gastric dumping very interesting- https://www.s4me.info/threads/help-hypoglycemia-coming-back-with-a-vengeance.4840/#post-87519 I find it very common not to know if I'm hungry, or nauseous. If I'm nauseous and I eat it will get worse...

My memory is extremely unpredictable. Sometimes the information is there, I know it's bl@@dy there and I can't get at it. I'm doing the mental equivalent if bracing two feet on the lower filing cabinet drawer as I pull with all my might against the upper drawer handle, which either refuses to...

Mine are quite old now but a quick look at Bose noise cancelling ones on the John Lewis website shows the cheapest at £229. There may be other brands that do a fair job but I couldn't make any recommendations. The Bose ones are pretty good.

Ah, you might well be right but were you aware they renamed the bungalow next door? They felt Martinique was more in line with their preferred lifestyle and Mrs C preferred it to Dunroamin. :laugh:

Riiight. Santa is said to live at the North Pole with Mrs Claus and the elves. There's probably less evidence for the fear avoidance theory.

Bolding mine. If I might correct you there - "...... or is sometimes assumed to be a primary condition as the cause is unknown. There is no evidence that it is a primary condition."

The sore lungs aside, I nearly always feel absolutely dreadful when I wake up, worse than when I went to sleep to begin with and even if it's just a nap. It's ironic, I need to sleep when I need to sleep to stop symptoms getting worse but sleep itself temporarily makes me feel worse. At times...

I was thinking something catchier. A single word coined specifically for this kind of thing.

I would really need to be grouped away from HR monitors due to difficulties caused by other conditions. Disrupted sleep is definitely a warning sign for me as is the wired but tired phenomenon. Interesting and it's made me think. When put under pressure and in the initial stages of PEM my...

Is there a verb for when people compete to outdo each other in the underperformance stakes? We see it so often I think we should coin a phrase for it, if there isn't one already.