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    Opinion piece: "Am I disabled?" by Joanne Limburg

    Sometimes it seems your damned if you tick "yes" & damned if you tick "no". Perhaps my view is slightly jaundiced by having ME but I do have family members, some no longer with us, who had fairly significant disabilities. "Yes" & it seems to me that you are perceived to be focussing on the...
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    BMJ Rapid Response: Dr Nina Muirhead

    One of my favourite bits - Do you remember there was a list of the most stressful things that tend to happen - bereavement, losing your job,moving house, divorce or relationship breakup etc. How is it possible that so many people who focus in mental health have failed to understand the stress...
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    Dr Alastair Miller's misleading claims about effectiveness of the English NHS (rehab) ME/CFS clinics, Royal Society of Medicine webinar in Sept '20

    Miller tweets "CBT relieves symptoms in cancer, the principle of GET is used in cardiac rehab......" Really? Exactly which cancer symptoms does CBT relieve that aren't already being treated? Conveniently forgetting that CBT in cancer is supportive & not directive. following the same logic...
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    Closed Recruiting: Measuring the Impact of (ME/CFS) on the Patient and Family using the EQ5D and FROM-16 questionnaire

    I hate questionnaires but.....this seemed like a worthwhile one & if I'm going to trust someone then Nina Muirhead seems a good bet. So, done and IM has completed his part too.
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    COVID-19 vaccine: UK regulators warn people with history of 'significant' allergic reactions not to have Pfizer/BioNTech jab

    There are two problem with that though 1. some of the ingredients are vague like emulsifiers or antibiotics for example. Which ones? Could different batches contain different ones? 2. a person may not know they are allergic to a specific ingredient because they may not have encountered it...
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    ‘Help Holger now’ video about a Swedish man with very severe ME

    It makes my blood run cold..... I can only imagine how horrific and stressful this is for both Holgar and his family. If he has been assessed by a psychiatrist recently would one they be prepared to get involved on his behalf? Speak directly to who ever it is that thinks sectioning is more...
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    COVID-19 vaccine: UK regulators warn people with history of 'significant' allergic reactions not to have Pfizer/BioNTech jab

    The snag is allergies and sensitivities are a) not the same and b) complicated to isolate and identify. A person may not know they are allergic to any of the contents of the vaccine. If you've already had it once and been fine then, unless you are very unlucky, the chances are you'll be fine...
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    COVID-19 vaccine: UK regulators warn people with history of 'significant' allergic reactions not to have Pfizer/BioNTech jab

    Yes, I have a pal who is allergic to eggs and that's why she couldn't have it. As far as I know I've never had a reaction to eggs in my life. Edit -spelling
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    COVID-19 vaccine: UK regulators warn people with history of 'significant' allergic reactions not to have Pfizer/BioNTech jab

    I have some problems with allergies too @youngscum. As I've aged mine seem to have become a bit worse & not better :(. I discussed the flu vaccine with my GP but, even though I don't have a history of anaphylaxis, it was decided the risk of a reaction was too high. Another problem is that I...
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    UK House of Lords/ House of Commons - relevant people and questions

    That should read - We are too incompetent to hold the data in a manner that allows us to answer fairly basic questions. Edit - that's the govt dept that's too incompetent, not @Sly Saint. I reckon in we could arrange an ME holiday for Sly Saint & set her loose on the data she'd soon have to...
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    Population Research UK

    Let's just hope they are pickier than Cochrane when it comes to assessing the quality of evidence & the risk of bias when they're curating that data.
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    ‘Girl in the Window’ From award-winning author Penny Joelson

    Haven't read the book and briefly scanned the review. I wonder, could the reviewer have deliberately chosen to misrepresent ME as a mental illness in the hopes of causing a bit of controversy & drawing some attention to themselves?
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    Perfectionism, depression and anxiety in chronic fatigue syndrome: A systematic review, 2020, Cherry et al

    Apologies, if I misunderstood. However, as someone who did overexercise in the first number of years this was more due to a complete lack of any decent available advice rather than being driven or perfectionism. If the only advice you receive is to do what you can do, keep moving etc and there...
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    Perfectionism, depression and anxiety in chronic fatigue syndrome: A systematic review, 2020, Cherry et al

    Yes, that's your opinion based on your measure of it. That's how you judge yourself and those around you. What is obsessively driven? What is impossible? IM and I have been perceived as being obsessively driven because we couldn't always make it home for Christmas holidays. Sometimes.key...
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    Perfectionism, depression and anxiety in chronic fatigue syndrome: A systematic review, 2020, Cherry et al

    It is subjective though. Taking health out of it for moment. If a person is generally thought to be have a maladaptive trait by others but they are happy and fulfilled then is it really maladaptive? If my husband had a really awful week at work and decided to spend the best part of a day...
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    Perfectionism, depression and anxiety in chronic fatigue syndrome: A systematic review, 2020, Cherry et al

    What is maladaptive? What's maladaptive for one individual might be perfectly appropriate for another. What is perfectionism? Again what's perfectionism for one is appropriate behaviour for another. Just another way to patient blame & use it to justify your own existence. What makes this...
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    "Today’s Best Practice Will Be Rubbished Tomorrow" (CFS and CBT/GET mentioned briefly)

    I would have liked something added to this, some reference that attempts to silence patients and gaslight them has served to hold back progress in this field. With a conclusion that patients should be heard and not just seen in future.
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