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    News from Scandinavia

    The usual awful old guff. He also says- Right. It simply does not occur to them that the reason so many ME patients might seem to be struggling with life, is because they are sick. They might have gone to the doctor several times struggling to recover from an virus. Then when tests show...
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    Coronavirus: Advice from ME organisations

    The advice in the UK is to wash hands for at least 20 seconds and they suggest singing happy birthday to you* twice as you do so to make sure you do it for long enough. They also remind people to wash between all fingers and not to forget thumbs and back of hands. * Warning - if your singing...
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    Coronavirus - worldwide spread and control

    It's so very hard to know..... You enjoy the football so much it seems a shame to miss it. The vast majority of people don't have corona virus. On the other hand close proximity to lots of other people. Lots of shouting and cheering so presumably a bit more chance to inhale other people's...
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    FINE trial patient booklet 29/04/05 Pauline Powell

    Absolutely. Not only to make them aware that there are issues with the theory behind the BPS treatment, but also to remove any deniability and leave a paper trail while doing so. The only worry I have is that some patients are very vulnerable. Their GPs are the gatekeeper to support services...
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    FINE trial patient booklet 29/04/05 Pauline Powell

    Yes! This. They absolutely should be held personally accountable. They are qualified health professionals in their own right. That's why they're doing the job. That's why they they get paid. Often you might find a nurse giving a particular type of injection or treatment. Not because the...
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    FINE trial patient booklet 29/04/05 Pauline Powell

    Also doing a puzzle - :laugh::rofl::rofl: Have they ever met an ME patient? There you are losing the ability to speak, but sure yeah....Fill in an application form for MENSA while you're at it.
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    FINE trial patient booklet 29/04/05 Pauline Powell

    Yep. A sure prescription for a trip to A&E for most of us. I literally cannot be trusted not to injure myself with the most innocuous of household items when I start to hit a slump. Even the b@@dy walls become a hazzard!
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    I think most of us forget how trusting and naive we were about doctors before we got ME. Most of the general public, unless they have experience to the contrary, will completely swallow what they are told. Especially if they are told this is the top man to see, there are very few experts and...
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    From my own experience of BPS proponents is that meaning and interpretation are as fluid as water. They have the answer - now it's up to you to tie yourself into a mobius strip trying to shape the problem.
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    Coronavirus - worldwide spread and control

    Do people not usually wash their hands?:giggle::yuck: IM popped to the shops this morning for some milk. He also decided to see if there were any little bottles of hand sanitizer (with 70% alcohol) to carry when out and about. We only need one small bottle really. Normal handwashing with...
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    Thesis: "Women on sick leave for long-term musculoskeletal pain: Factors associated with work ability, well-being and return to work", Mamunur Rashid

    Right. Just have a little think about that PhD person.... Without family and social support how will many women who, as @Hutan points out, have responsibility for children or elderly relatives return to work if/when this support is withdrawn? I would like to ask the author - who did all the...
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Absolutely. I became ill in the 90s after the whole "yuppie flu" business. All I knew about ME was what I read in the papers. So, as we've discussed in some other thread recently, I didn't actually believe that ME was a serious disease. At worst it was someone who had allowed themselves to...
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    Coronavirus - worldwide spread and control

    Sadly, it's probably already out there. Apparently Haslemere has already been affected. Someone I know lives there and the Health Centre had to be closed for a deep clean after a patient tested positive for the virus and ended up in one of the London hospitals. I believe some people in the...
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Never mind the typos- Brilliant! In all the arguments over the years this is the first time I've heard this one and it is absolutely spot on.:thumbup:
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    Work Rehabilitation and Medical Retirement for [ME/CFS] Patients. A Review and Appraisal of Diagnostic Strategies, 2019, Vink et al

    Absolutely. Unfortunately, every so often you'll see some local patient group or other lobbying for more/better services and treatment. In the current situation that means more of the same and, worse still, the powers that be and the likes of Crawley et al can then claim that patients asked...
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    United Kingdom: Leeds and York Partnership - CFS centre

    As is usually the way with this BS. Promise a solution based on enabling a person to help themselves while carefully not committing to details. Then when the person is not or does not feel enabled, it's all their own fault. Snake oil salesman technique 101.
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    Loooong Headaches

    Luckily, it didn't take too long to reverse it. A week or two of daily headaches and then they tapered off. Long enough when you're still suffering though!
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