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Now they just need to get their heads around the fact that the apps were problematic, some users gave up because, despite complaining that many of their symptoms weren't included in the app and were too cumbersome to keep manually adding in every day, they were ignored. By the very questions...

From the quote in @Kalliope 's post above What he doesn't say is that the symptoms are usually exacerbated by the therapists fear and beliefs & not the patients. Especially, in the early years before a patient learns better they are very trusting of their doctors & have a lot of faith in...

And "pacing up". Baby steps but still very welcome to see them move in the right direction.

Yes they did some tests on that a few years back. More than the BPS crew have ever done despite claiming so many people are deconditioned and ill because of it. If the BPS crew were serious about it why didn't they do tests - take blood, MRIs and what have you as healthy volunteers...

As someone who has given them some stick in the past, I have to say well done & thank you to AfME for this one. :thumbup:

Yes, jobs for people with nothing to do and, apparently nothing worth contributing except to help benefits agencies and insurers to avoid paying out. What, if any, biomarkers are there of primary deconditioning by the way? Is it possible to test for it beyond exercise tests and a physical...

Can we insist that anyone, anywhere who ever considers writing a health questionnaire first has to have this tattooed backwards on their forehead so they have to read it every morning in the mirror?

Oddly when I tried to sign the petition mentioned at the top of the thread, it looked like I had but I didn't get the usual pop up box responses. I got those when I signed the Stop Leaving Disabled People Behind one though. When I went back and did it again though it accepted my details and...

Do you have a link for that one @Kitty? Edit - sorry I found it myself - couldn't find the search function originally. For those who want it: https://you.38degrees.org.uk/petitions/stop-leaving-disabled-people-behind

Ah.. I read that differently. I thought it meant how many of the different types of investigations you had rather than the number of each. So I have had blood tests and naff all else. It is possible if I kept turning up like a bad penny they might have been persuaded to do a scan or something...

Well, I guess some might see it as "you have to speculate to accumulate" and a nice letter might make you put your hand in your pocket more readily next time round? Some people might only be able to donate a fiver (& they all add up) so rather annoying to thing they might be spending as much on...

@dave30th - a question I recently received some post from Berkeley University. I get letters a couple of times a year. They're not bothersome but I would rather they saved the postage and added it to your campaign. I'm thinking if 500+ UK residents donate and all receive a couple of...

I have donated. and that wasn't me!

What is maladaptive perfectionism though? In the case of a surgeon we would consider perfectionism to be a good thing. Perhaps in other walks of life where budget, time and other restraints are imposed on a person perfectionism might be a handicap. People will tend to carry over traits from...

In my view, if this person wants to do something constructive they'd better serve by turning their focus on the people who spend their entire careers denying reality. What type of psychological traits make a person repeat the same interventions over and over, ignore and avoid the evidence of...

:hug:. Not at all. That's the trouble - something that's so glaringly obvious to us and yet researchers and those involved in public health and policy making (and very well paid from the public purse) seem oblivious. Even if they are genuinely that clueless over first principles those who...

Sure, but first you have to understand what it is you're looking at before you go defining it. If you narrow your field too soon then you miss important information. It may well be necessary to make assumptions to give you a starting point but you then have to keep in mind that those were...

This is all about the self serving business of keeping people sick, keeping other specialities that might be able to help away and themselves on the gravy train. The whole gastric ulcer/heliobacter business all over again. At least in those days they came from a starting point of ignorance...

I find this strange - perhaps it's the wording or just my brain. It seems to assume that all syndromes are known or that everything, even if it's something never seen before, should be shoehorned into the boxes where everything else fits. By all means compare & bear in mind lessons learned...

:banghead: Again with the idea that everyone who is "young" is healthy. What about all those who are in age terms low risk but live with long term health condtions? Diabetes, asthma and so on. Several of my husband's work colleagues who are only in the 40s have heart conditions, one guy had a...