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If I became magically healthy tomorrow I don't think I would go back to my old life now either, even though I really loved it at the time. Not because it wasn't healthy - I was no more unhealthy in lifestyle than most - but because I'm over two decades over and my priorities & perspectives...

Carson - I'm not sure if he's being honest here or having a laugh. I love the way the word "definition" here sounds static and immutable instead of being the fluid and very slippery thing it becomes at the hands of BPSers.

I had a phone call with a local carpenter the other day - he needs to come back and finish up a couple of bits and pieces - he's really struggling to finish some jobs. He's been waiting for over 6 months for a specific set of door handles for one customer. Lots of things are quite hard to get.

I think this is also called amoxicillin in the UK. I was prescribed a 5 day course of amoxicillin after a dental implant was .....installed (I know that's not the right word but it's close?). I honestly can't say I noticed any side effects at all though the trio to the dentist was enough to...

Cue sarcastic laughter.

I hope she recovers quickly. I am long sighted but with quite high astigmatism. I get some eye trouble when in PEM and a lot of bother if I overuse my eyes. I suspect the muscles controlling the lens when I focus and that control movement of the eyeball itself are affected by PEM just as my...

Yep, I still sweat when I get too hot or if IM has inadvertently gone overboard with the chillies in a curry etc.

I have heard of junior doctors who were interested in a patient or two on wards with a curious malady (ME)who were warned off when they wanted to investigate further. They were told it would be dead ending their career. Those junior doctors factors probably grew up to be clinicians who may...

If memory serves (& if usually doesn't) there were interesting research leads pre and early 80s. Many of patients who diagnosed (UK) before that era (I was diagnosed late 90s) seem to feel that there was a sudden shift in attitudes and research from the 80s onwards. This coincides with the...

Vested interests of insurance companies and benefits systems? One of Professor Sir Simon Wessely's areas of expertise is epidemiology. So, I guess people would look to him to see if it's an area worthy of investment. A very small group of people with a stranglehold in the field.

It's quite possible they have. This is something that happens a lot with Sharpe and Wessely - or so they claim. They only seem to correct themselves when directly tackled, never publicly correcting what they said. Even if it is a misinterpretation, it is one that is very common and, whether...

I would say it's more because it's been mischaracterized as a relatively trivial psychiatric condition. it isn't a psychiatric condition but even if we were to consider it as such it might be seen as more trivial in the sense that - - relatively few sufferers compared to anxiety and...

Is there anything the ME community can do to help get it sorted out? I don't tweet but do follow some threads without logging in & one of the threads I regularly look at was recently locked by twitter. They were taken out by an algorithm who wrongly interpreted or parsed, wherever algorithms...

Ah, I wonder if that's why I remember shivering much more when I was younger. I didn't live in a centrally heated house until my mid twenties. As a schoolgirl and uni student I had quite long walks in freezing cold and rain to and from the place of study. No heaters in the bathroom etc.

Yes. There's being cold and then there's being cold. The being cold because it is cold - verified by others etc. Then another jumper or blanket or whatever helps. Cold caused by PEM, thyroid, or anaemia doesn't really respond when I put another layer on, although being snuggled may provide...

Thinking about it I don't seem to shiver much. My muscles tighten and become painful. Sometimes I wonder why I'm in so much pain before I realize I'm cold. With thyroid & iron issues plus aging, it's hard to know how much if that is ME.

Yep me too. I found I would start to feel a bit grim, lightheaded and headachy. I'd sit with my feet up and have a piece of fruit and a large glass of water. I had always assumed starting to feel better fairly quickly was to do with the fruit and water. Since learning more about OI & POTs...

As @Trish said, to some extent. Many others will be left feeling guilty, shamed and inadequate. The damage to their confidence and self esteem will, in all likelihood, lead many of them to keep their mouths shut. Not only is directive CBT very effective at changing how some people fill in a...

The hallmark of a true BPS zealot. Take a symptom of an illness and make a confident declaration that it is comparable to something a healthy person experiences and recovers from. This is then seen as proof the issue is behavioural and ignores that the same proof can be used to say the symptom...

Correlation ≠ causation. Well, yes they would because they are healthy volunteers. Oh no it doesn't. It demonstrates that using healthy volunteers to try to mimic symptoms of a chronic illness doesn't work. If anything it might suggest that the sleep disruption in ME isn't behavioural nor...