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P Keeble is crashing so won’t report much more today (hardly surprising this would take a toll on anyone) “Maeve asked about contingency plan for if NG doesn’t work, on 28 June. It seems there was none” I will look around twitter for snapshots of the inquest. Apparently Dr Weir is up this...

Yup, the picture of different people making different decisions, or not making decisions, is building. We’re getting some idea of the “passed from pillar to post”

“Not sure if the press is here today but some firecrackers towards the NHS about lack of provision” “Sarah Boothby commenting on various consultants but Dr Strain being the lead but being overruled”

This one isn’t very clear. Dr Strain was seen as the lead but has no nutrition knowledge Psych said it isn’t a terminal condition

There are still Drs all over the NHS who think it’s psychological and Dr Strain has had frank conversations with them

TPN would only be offered if she was sectioned

It seems Dr Strain is giving evidence this morning. He is a Consultant and also a Snr lecturer at Exeter Uni Medical School and advisor to Action for ME. In June 2021 Maeve had been put on an eating disorder ward. NG tube was considered, but she couldn’t tolerate sitting at 45degrees so it...

That’s why I like the term “energy limiting condition” because it does explain (in a simplistic way) that we have energy, but it’s limited. That’s an easy concept for the “regular person” to understand. Oh you have some energy but not enough. That’s why you were at lunch last week but in bed...

I think colloquially people say “chronic fatigue” because it’s shorter. They should be saying ME/CFS which is shorter still. I see the Daily a mail in one report today did a side panel “explainer” of Chronic Fatigue which said the available treatment on offer is CBT and Graded Exercise Therapy...

I mean, the threat of being sued is really the only hammer left to crack this nut. I think if there were specific guidance as a result of this, and it wasn’t followed, and someone died it could be unlawful killing?

I don’t think they’re looking at prosecuting an individual, I don’t think gross negligence manslaughter would hold up, but I think the NHS/Government is going to get a serious rocket up the backside over this. I pray that @Jonathan Edwards excellent feeding paper is adopted as a protocol or...

W need a legal person to explain the possibilities, but this Coroner has a plan and knows exactly where this is headed. Hopefully by raising it with NHS it means were it to happen again, it would be Unlawful Killing as they’d been put on notice at the highest level that these failings aren’t ok.

Now that is interesting…

It’s an inquest into Maeve’s death so there are set outcomes -natural causes, accidental, lawful/unlawful killing, open verdict, industrial disease, narrative verdict. The Coroner then makes a report if necessary to the appropriate person or authority, I think that could be the HealthMinister...

It’s not public record so the public don’t know until on the day. A request for a list by another poster was refused by the court.

I wonder what the outcome is likely to be? Is it too much to expect Unlawful Killing? I think so. I guess the Coroner will be looking at a narrative verdict and reporting it to the NHS or Health Secretary?

And that’s the key all the way through, isn’t it? Wouldn’t you read up? The hospital staff, didn’t they read up? The dietician? If you’re contacted by Charles Shepherd, from a Major ME charity, don’t you read up?

Heartbreaking

Dr Shenton is not listed as a team member at the surgery where Dr McDermott is a partner

Apparently two nurses involved in Maeve’s care won’t be able to attend due to sickness.