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  1. Mij

    PEM discussion thread - post-exertional malaise

    Yes, I agree. "If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels" They also include exercise.
  2. Mij

    PEM discussion thread - post-exertional malaise

    Whether someone fits the 'current definition' of ME or not doesn't mean they don't have ME, particularly in the early stages. I didn't experience PEM for 10 years, but I clearly had ME and now going on 30 years. It was in the cards from day one. That is my experience. The marathon...
  3. Mij

    PEM discussion thread - post-exertional malaise

    There is a big difference between increasing level of activity and increasing level of "fitness'.
  4. Mij

    PEM discussion thread - post-exertional malaise

    @Peter Trewhitt What do you mean by 'at risk for ME". How do they determine who is at risk and who can increase and who can't? "PEM"? Why give advice regarding exercise in the early stages when they don't understand PEM to begin with? The marathon runner in that video I posted was...
  5. Mij

    PEM discussion thread - post-exertional malaise

    @Andy "If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels" We don't understand the pathophysiological of PEM, and yet they're using it as a general 'scientific term' to advise patients on exercise. If a patient is in...
  6. Mij

    PEM discussion thread - post-exertional malaise

    Posts moved from the WHO news thread "If you don’t experience PEM, you can gradually increase your level of activity or exercise to improve your fitness levels" Well, I didn't experience PEM for 10 years until I started exercising . . . so wrong again.
  7. Mij

    Implications of Innate Immunity in Post-Acute Sequelae of Non-Persistent Viral Infections, 2021, Hirschenberger et al

    I had a hs-CRP blood test done years ago to measure low levels of inflammation.
  8. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    “This virus doesn’t end once you get discharged from the hospital or once you get over the initial acute symptoms,” says Putrino. “This virus persists.” He notes that while the recent Lancet study only focused on hospitalized COVID-19 patients, other, albeit smaller, studies have shown that...
  9. Mij

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Essentials of Diagnosis and Management, 2021, Bateman et al

    It doesn't work for mild or moderate either. A persons improvement has nothing to do with pacing, pacing prevents harm. A patients improvement simply occurs on its own.
  10. Mij

    Oxaloacetate

    My Oxaloacetate levels on my OAT is at -33% (below normal range). Taking a supplement does zero to correct this. Dr. Kaufman is suffering from chronic recycling syndrome.
  11. Mij

    Is catching Covid now better than more vaccine? BBC article

    In a news report just this past week, the CDC are saying that immunity starts to wane after 3 months. The Moderna efficacy is much higher than Pfizer and AZ.
  12. Mij

    Is catching Covid now better than more vaccine? BBC article

    I felt the same way a while back, but now I'm going for the third dose if offered b/c they will expire and go to waste here in Canada.
  13. Mij

    Covid-19 vaccination experiences

    My dosage interval of Pfizer was only 28 days. I will be getting the booster in 6 months.
  14. Mij

    F.D.A. Approves GHB, a ‘Date Rape’ Drug, for Rare Sleeping Disorder

    My dear friend took Xyrem for ME related insomnia, he did not do well on it. He experienced hallucinations.
  15. Mij

    Article in Verywell:Treating Post-Exertional Malaise in Chronic Fatigue Syndrome

    Small movements for those who are able can be beneficial, simple ways to engage in low-grade, constant movement throughout the day, utilizing natural movement patterns like walking and bending to get the pot out of the lower drawer.
  16. Mij

    Covid-19 vaccination experiences

    So I'm a little over 2 weeks post second Pfizer and I can say that it didn't improve my vestibular virus or health.
  17. Mij

    Latent gammaherpesvirus exacerbates arthritis through modification of age-associated B cells, 2021, Mouat et al

    My understanding is that the casual link with RA are “effect” rather than “cause” and can be explained by an underlying immune dysregulation?
  18. Mij

    The Washington Post: My hope vs. myalgic encephalomyelitis, a chronic neuroimmuno illness

    He received a letter of warning from the FDA several years for making 'treatment' claims to "treat' alzheimer’s, heart disease, cancer and diabetes. He's a shyster.
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