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I am seeing a lot of PTSD and emotional trauma analogies though.

I would also be interested to know how long these patients were ill. The duration of illness is important imo. Do all patients experience autonomic issues? That in itself could trigger differences in outcomes? My experiences with symptoms from PEM has changed over the years. At...

https://www.meaction.net/2017/02/22/stanford-team-announces-breakthrough-in-mecfs-research/ "The team’s metabolomics tests on severely-ill patients revealed problems with the citric acid cycle. Participants’ blood work showed that some of the chemicals involved in the citric acid cycle are very...

It's like reading SW gaslighting fortune cookie fails.

Wessley: "Yes. “Pushing through” is not part of GET. It is about establishing a regular baseline and then gradually increasing without incurring severe PEM and thus going back to square one. CBT is about activity not exercise per se. Neither are about getting fit". If he was very...

“It’s important to reteach the body that it doesn’t have to be afraid of breathing," Sound familiar? :emoji_rolling_eyes:

It doesn't, but sometime patients can develop a bacterial complication from the virus.

https://journals.lww.com/ajnonline/fulltext/2011/07000/Long_Term_Effects_of_ARDS_After_ICU_Stay.11.aspx

The recovery pathway of SARS survivors mirrors that of ARDS patients. There has been interest in the long term outcome of patients who have survived acute respiratory distress syndrome (ARDS), as evidenced by seven studies published since 2000 on patient outcome following an episode of ARDS...

Dysautonomia Intl. reaching out to Chris Como (CNN) to bring awareness to Post-Covid POTS.

Whether long haulers develop ME or a unique illness, it's only logical to advise zero exercise when they can't even climb 2 sets of stairs. Get up for a few minutes, walk around and stretch a little to stay limber. That's all I did for many years, and I didn't lose my level of cardio...

The video states that too much rest 'will slow your recovery and lose muscle mass increasing your risk of injury'. How ironic that they mention 'injury'. :emoji_rolling_eyes: (this emoji has become my favourite on this forum). I lost very little muscle mass over the course of many years of...

https://creakyjoints.org/living-with-arthritis/coronavirus/patient-perspectives/covid-19-long-hauler-chronic-fatigue-syndrome/

An interesting observation for me is that I didn't have sleep issues when I was in PEM, I slept ok. My issues with sleep now is when I overdo myself mentally and physically during the day and don't get proper rest in between activities, my brain becomes wired-up like I'm on adrenaline...

My sleep switched off like a light switch overnight after sleeping like a baby for 11 years with ME. Poof, it was gone. I completely lost the ability to fall asleep and had to take trazodone for 1 1/2 years every night. My natural sleep eventually came back and I no longer needed meds...

Possibly because my ME doctor characterized my history as relapsing-remitting and permanent? I was also approved for the Disability Tax Credit which has a very restrictive criteria and difficult to obtain.

I was diagnosed with CFS/PVFS in 1992 for my Federal disability benefits by an ME doctor who was one of the authors of the 2003 Canadian Consensus Criteria for ME. I was approved immediately. The diagnosis of CFS still remains on my medical file today.

(referring to the BMJ letter) Michael Peel, general practitioner Author affiliations mpeel@doctors.org.uk In inner London, where we saw some of the earliest cases of covid-19 in the United Kingdom, we are now seeing patients with prolonged symptoms like those described by Salisbury, who...

I hope in the near future that they find biomarkers for the pathophysiology of PEM and rename it. Perhaps change the definition of ME to include the new biomarkers for PEM, and then get rid of CFS for good.