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Is there evidence of organ damage from ME? How many patients died from ME in the early stages of less than 6 months? I think Dr. Klimas made the statement that ME was like late-stage AIDS that lingers on for decades. Injuries yes. There are various processes leading to multi-systemic...

Is shortness of breath the same as out of breath? I've experienced feeling out of breath quickly from viral infections, particularly when I had HHV6 and EBV reactivation. One time I had to lie down on someone's lawn because I couldn't walk another step on my way to my doctor's clinic.

@Dolphin My apologies, yes it is an audio link (not video). https://www.bbc.co.uk/sounds/play/m000mzms

I feel like I have leprosy after reading how they view ME.

From your post #1902. The tweet has a link attached with a video.

The video is so eerily reminiscent of my experience. The women at the end says that she doesn't like telling people how she's feeling on any particular day because she doesn't want to disappoint herself or others when they ask how she's doing.:emoji_rolling_eyes: I eventually stopped...

My onset was a sudden viral/vertigo/mild sore throat/ear and grinding/nausea gut sickness. I don't know what virus I had. I went through 5 1/2 years of PVFS and felt that I had eventually recovered from that virus. For the last 18 years I feel that my immune system has changed and...

Rats that drive tiny cars.

@Invisible Woman I can barely follow a recipe and forget to add ingredients when it's written right in front of me. And you want to add a timer to that?

I'm glad doctors are finally including dysautonomia with ME. It provides other doctors a better understanding on how debilitating ME is without focusing on the 'mysterious, fatigue . . .' lingo.

Our future:

A senior in my building owns a dog named Wessely.

@Creekside There is a thread here discussing experiences with black cumin. Dr. Alain Moreau has an interest in thymoquinone, a chemical found in black cumin seeds. Nigella sativa (also known as black cumin).

to add . . . Cognitive impairment is a common and disabling non-motor feature in patients with Parkinson's and other neurodegenerative disorders who experience orthostatic hypotension. And there are many different types of OI with very few specialists who can diagnosis them.

Could immediate PEM be the result to those who have a very lowered 'energy envelope'? I didn't experience PEM during the early years of PVFS, my energy envelope was wider because I hadn't caused any 'injury' (yet) from exercising. I repeatedly went over my limit and this was when my...

Do you have OI or autonomic issues? Lifting my arms above my head gives me a PEM-like feeling. I need to lie down immediately after for an hour to recover. For me it doesn't make any difference which muscles I use. I can't do any resistance-type exercise except for light weights from...

Investigators at @NTUSg describe another case of postural tachycardia in a patient with COVID-19. This is the second case after the one described by @StanfordMed researchers. https://link.springer.com/article/10.1007/s10286-020-00733-x

My bolding answers: Excellent questions.

I was able to read the tweet when you first posted it. It disappeared pretty fast.