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The EB virus can develop into autoimmune diseases and cancer years from now. Some never fully recover and continue to experience less stamina. Look at HPV, and how some strains develop into cervical cancer 15-20 years down the road if not detected and treated in the early stages. Where...

Patients may develop POTS after a viral illness, serious infections, medical illness, pregnancy and trauma such as head injury. Not all post-infectious patients develop ME.

https://www.washingtonpost.com/world/the_americas/coronavirus-oxford-astrazeneca-vaccine-trial-death/2020/10/21/3f5bedac-13c0-11eb-ad6f-36c93e6e94fb_story.html

I'm wondering what treatments are available for long-haulers if testing doesn't indicate a treatable problem? If it's post-infectious, then most doctors can't really do much at this point except wait it out because they won't know what's going on with their bodies either. They can...

I wonder if their 'prescription' will be to go to the mall and "buy something nice" like I was told by an ER doctor. Btw, I have always bought myself something nice, but it didn't prevent me from becoming ill.

Exactly. It's cumulative activities outside of a pwME 'energy window'.

Do they know (yet) whether these are new infections or reactivated infections?

Researchers at McMaster and Brock universities in Canada have developed a hand-held device that can provide rapid measurements of cancer biomarkers in blood samples.

The immune response to the vaccine might not last, and then we will need a booster shot monthly (twice?) or yearly? My second Hep B jab was the 'one' that negatively affected my stamina and brought me down.

@Leila I'm not anti-vaxx either. But, during my sudden ME viral onset I was vaccinated x4 (!) within a 2 month period. It was terrible timing and I'll never know if that triggered ME. I have not had a vaccine since (28 years). My immune system feels like it has been over active...

How does everyone feel about making this vaccine mandatory? Or can they?

@Jonathan Edwards So wearing a mask is much better at preventing us from contracting the virus in the first place. Not as practical as getting a vaccine, but something I would prefer.

The spinning type vertigo in my experience is a viral onset. I eventually stop spinning, but the equilibrium imbalances remain for several months. Since my onset was sudden viral vertigo, I think I may have some sort of injury in my vestibular system. The other equilibrium issues...

There are many causes of vertigo too.

Any type of exercise that causes PEM is not suitable. After many years, I'm still not confident that power walking (which I can do for an hour) is ok even though it doesn't trigger PEM. It can take years to realize with proper before and after testing (Workwell Foundation) to actually...

@butter. 4:30 minutes "some improvement".

Isn't that the definition of insanity? :emoji_thinking:

@Ravn My main issue is putting pwME into categories of 'mild, moderate and severe' and expecting a different outcomes.

No no no. I would have been considered "mild" in 2000. I was functioning at 80-90% as long as I got adequate rest in between activities. Some days I had to rest longer for whatever reason. I was not "restored" 3 days after exercise, yes I felt better, but I could not exercise...