Yes, my misinterpretation was that doing more made him feel better, so he was able to do more.
I was able to do more early in the illness over time naturally, but when I went over my 'limits' is when I started experiencing PEM despite how well I felt when I recovered from PEM a few days...
I have no one doubt he recovered. It's encouraging to read stories about people who suffered and recovered.
The thing with ME is that you can go into remission. We can pace and rest for 30 years and still have ME once we start being fully active again. Pacing and resting doesn't...
My seasonal effect disorder is worse starting mid summer. The constant sunshine and heat gives me anxiety and I need darkness. I start feeling better during the colder winter months.
He is unable to accept the fact that he never had ME. Digging in the archives now to try and prove his point is just embarrassing for someone in his position.
Abstract
Background
The tryptophan–kynurenine–nicotinamide adenine dinucleotide (oxidized; NAD+) pathway is closely associated with regulation of immune cells toward less inflammatory phenotypes and may exert neuroprotective effects. Investigating its regulation in central nervous system (CNS)...
I also forgot to mention that I was vaccinated (tetanus, rubella and Hep B) during that 6 months period, and it was after the second Hep B jab that I started losing stamina. I could no longer walk to school and started taking the bus.
I'm going to assume that the participants had all their metabolites tested, including Oxaloacetate before taking the supplement?
I had other metabolites tested on my OAT, and there are 3 others at the beginning of the citric acid cycle that were below normal range.
Could there also be differences between riding a bike and running? I can run and was able to use my stair master (years ago) without being out of breath, but riding my stationary bike put me out of breath quickly.
Are they measuring pwME/POTS and pwME w/o POTS?
I never had issues with my breathing when I was exercising with ME.
The gas exchange is interesting. This is what Mark Van Ness discusses in his videos.
@Andy
Can you understand how this might be misinterpreted by some? Do the 'experts' on "PEM" understand that PEM (as defined by the ME community) is life long?
As defined by the Heart Cardiovascular Institute:
Exercise vs. Physical Activity
According to the American College of Sports...
Exactly this. I'm able to power walk for one hour 2 to maybe 3 times a week depending on how I feel. But I don't know whether that is a good or bad thing to do. I don't think I feel worse off, but who knows really? So I cut my walking to 40 minutes and live on hope that it's ok.
I had a sudden viral vertigo onset and 'extremely' elevated anti-thyroid antibodies 6 months after onset. Had a thyroid scan and was told I had a viral infection. I 'recovered' from the initial virus 9 months later only to have a major relapse shortly after returning to work. So 1 1/2...
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