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  1. Mij

    Video: Phil Murrays ME/CFS full recovery story & call for more research funding

    Yes, my misinterpretation was that doing more made him feel better, so he was able to do more. I was able to do more early in the illness over time naturally, but when I went over my 'limits' is when I started experiencing PEM despite how well I felt when I recovered from PEM a few days...
  2. Mij

    Video: Phil Murrays ME/CFS full recovery story & call for more research funding

    Thanks for the correction. That was my experience too.
  3. Mij

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I think PG definition of 'evidence synthesis' is his own selective narrative on his Twitter platform.
  4. Mij

    Video: Phil Murrays ME/CFS full recovery story & call for more research funding

    I have no one doubt he recovered. It's encouraging to read stories about people who suffered and recovered. The thing with ME is that you can go into remission. We can pace and rest for 30 years and still have ME once we start being fully active again. Pacing and resting doesn't...
  5. Mij

    Seasonal Effects on Gene Expression, 2015, Anita Goldinger et al.

    My seasonal effect disorder is worse starting mid summer. The constant sunshine and heat gives me anxiety and I need darkness. I start feeling better during the colder winter months.
  6. Mij

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    He is unable to accept the fact that he never had ME. Digging in the archives now to try and prove his point is just embarrassing for someone in his position.
  7. Mij

    Kynurenine Is a Cerebrospinal Fluid Biomarker for Bacterial and Viral Central Nervous System Infections, 2019, Sühs et al

    Abstract Background The tryptophan–kynurenine–nicotinamide adenine dinucleotide (oxidized; NAD+) pathway is closely associated with regulation of immune cells toward less inflammatory phenotypes and may exert neuroprotective effects. Investigating its regulation in central nervous system (CNS)...
  8. Mij

    News from Canada

    I didn't realize that Canada was 'a leader in brain research'.
  9. Mij

    News from Canada

    VINEx and Covid Long Haulers support group Canada welcome Liberal Party of Canada's commitment to allocate $100 million to COVID-19 research...
  10. Mij

    Bleeding heel fissure

    Don't walk around barefoot for now.
  11. Mij

    PEM discussion thread - post-exertional malaise

    I also forgot to mention that I was vaccinated (tetanus, rubella and Hep B) during that 6 months period, and it was after the second Hep B jab that I started losing stamina. I could no longer walk to school and started taking the bus.
  12. Mij

    Oxaloacetate

    I'm going to assume that the participants had all their metabolites tested, including Oxaloacetate before taking the supplement? I had other metabolites tested on my OAT, and there are 3 others at the beginning of the citric acid cycle that were below normal range.
  13. Mij

    Dane Cook's analysis of exercise data of the CDC's MCAM study

    Could there also be differences between riding a bike and running? I can run and was able to use my stair master (years ago) without being out of breath, but riding my stationary bike put me out of breath quickly.
  14. Mij

    Dane Cook's analysis of exercise data of the CDC's MCAM study

    Are they measuring pwME/POTS and pwME w/o POTS? I never had issues with my breathing when I was exercising with ME. The gas exchange is interesting. This is what Mark Van Ness discusses in his videos.
  15. Mij

    Fluctuating food sensitivities, theories?

    @borko2100 Do you know if you have low testosterone?
  16. Mij

    Fluctuating food sensitivities, theories?

    The symptoms that @borko2100 described were my menopause symptoms. Not suicidal, but very dark moods that I never experienced in my life before meno.
  17. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    My understanding is that it also prevents mutation and new variants? Does this make the current vaccine less effective against the new variants?
  18. Mij

    PEM discussion thread - post-exertional malaise

    @Andy Can you understand how this might be misinterpreted by some? Do the 'experts' on "PEM" understand that PEM (as defined by the ME community) is life long? As defined by the Heart Cardiovascular Institute: Exercise vs. Physical Activity According to the American College of Sports...
  19. Mij

    PEM discussion thread - post-exertional malaise

    Exactly this. I'm able to power walk for one hour 2 to maybe 3 times a week depending on how I feel. But I don't know whether that is a good or bad thing to do. I don't think I feel worse off, but who knows really? So I cut my walking to 40 minutes and live on hope that it's ok.
  20. Mij

    PEM discussion thread - post-exertional malaise

    I had a sudden viral vertigo onset and 'extremely' elevated anti-thyroid antibodies 6 months after onset. Had a thyroid scan and was told I had a viral infection. I 'recovered' from the initial virus 9 months later only to have a major relapse shortly after returning to work. So 1 1/2...
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