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  1. Mij

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    I consider myself 'fit' if I can still lift my cast iron lid off of my Dutch oven.
  2. Mij

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I've had ME for 30 years. Sudden viral onset and PVFS for 5 years or so. Started improving with no noticeable viruses for 6 years after that. After taking immune modulators in 2001 and relapsing (reactivating HHV6 and EBV), I continue to have reactivations for the last 20 years...
  3. Mij

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Yes, very good point regarding ME. But LC are not gradual onset.
  4. Mij

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    Actually no, the advice didn't make sense to me at all, and I believe most people with LC will start exercising more despite warnings. The problems is that I couldn't walk/stand or do much at all in the first 5 yrs of illness. I didn't need anyone suggesting or telling me how to move...
  5. Mij

    Covid-19 vaccines and vaccinations

    https://www.cdc.gov/coronavirus/2019-ncov/vaccines/keythingstoknow.html I hope some one can answer your question regarding antibiotics.
  6. Mij

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    to add . . . As well meaning as some physiotherapist are, they do not have the medical back ground or experise on how to 'treat' PVFS or post infectious states.
  7. Mij

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    @Barry The ME doctor I saw advised me to do nothing. I don't think that's too difficult to understand? Go for a walk and see how you feel after? Most patients will do what they want anyways until they hit a block?
  8. Mij

    JOSPT: Humility and Acceptance: Working Within Our Limits With Long COVID and ME/CFS - Décary et al - 2021

    I didn't do anything during PVFS. I went out for short 5-10 minute walks at my own pace after the 5 year mark when I felt well enough to see how I would manage. It took at least one year after that to start increasing slowly to 30 minutes w/o feeling bad the next day. I didn't need...
  9. Mij

    Platypnea-orthodeoxia syndrome mimicking postural orthostatic tachycardia syndrome, 2021, Jeremy K Cutsforth-Gregory

    https://link.springer.com/article/10.1007/s10286-021-00805-6?fbclid=IwAR3dztGXVQKGqvQ1LwdYcCEJiHuoX0M7HVmzlgcd-ZF_RUTAVPEVFpENbP4
  10. Mij

    UK: BBC survey: the experiences of disabled people in the UK during the Covid-19 pandemic

    The Lancet describes it pretty well https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(21)00625-5/fulltext
  11. Mij

    Covid-19 vaccines and vaccinations

    Does the news announce every plane that lands safely? I didn't think so.
  12. Mij

    Effect of High Dietary Sodium Intake in Patients With Postural Tachycardia Syndrome, 2021, Garland et al

    It's possible that people with certain medical conditions need to find the right balance between sodium and water intake, this includes electrolytes. Diabetes insipidus for example. I don't know what hormonal imbalances I have, but a higher sodium intake improves my overall being.
  13. Mij

    Effect of High Dietary Sodium Intake in Patients With Postural Tachycardia Syndrome, 2021, Garland et al

    Sodium triggers your thirst mechanism and helps to reduce fluid losses from the urine- sodium helps to keep you hydrated. Adding sodium in your diet/drinks aids in the hydration process. This is not POTS related as Trish mentioned. I can stay upright longer when I drink electrolytes.
  14. Mij

    High CO2 levels drive the TCA cycle backwards towards autotrophy, 2021, Lydia Steffens et al

    This pathway sheds light on microbial ecology in extreme environments and offers clues to early life on Earth. https://www.nature.com/articles/d41586-021-00977-1?utm_source=twitter&utm_medium=social&utm_content=organic&utm_campaign=NGMT_USG_JC01_GL_Nature
  15. Mij

    Covid-19 vaccination experiences

    @TigerLilea I'm sorry to hear you're not feeling too well. My sister has Hashimoto, and felt fine after her first dose of AZ vaccine. It appears that symptoms are mixed for everyone across the board. The J&J vaccines are arriving in Canada this week. This is the one I want, but...
  16. Mij

    COVID-19 and post-infectious myalgic encephalomyelitis/chronic fatigue syndrome: a narrative review, 2021, Poenaru et al

    I don't want to be associated with any paper that uses PG as a reference. "This stuff is real. People are ill. Doctors need to stop diagnosing this as anxiety. We have messed up before, lets’ not do it again with long term covid-19 illness. Paul Garner, Professor at the Liverpool School of...
  17. Mij

    Is ME/CFS seen as a risk/priority group in the vaccination against sars cov 2 in your country?

    There's a group of Canadian software engineers that have set up a Twitter account "Vaccine Hunters" guiding Canadians on where they can book appointments and find walk-in clinics. It appears that many seniors don't want the AZ vaccine, so many are waiting for PZ or Moderna. So now anyone...
  18. Mij

    ME Association Statement on Exercise in ME/CFS and Long Covid, April 2021

    I think the improvement would occur on its own without proper exercise or pacing? The more I exercised over my limit, the worse my PEM became.
  19. Mij

    Covid-19 vaccines and vaccinations

    Herpes zoster following BNT162b2 mRNA Covid-19 vaccination in patients with autoimmune inflammatory rheumatic diseases: a case series https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/keab345/6225015
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