I've had ME for 30 years. Sudden viral onset and PVFS for 5 years or so. Started improving with no noticeable viruses for 6 years after that. After taking immune modulators in 2001 and relapsing (reactivating HHV6 and EBV), I continue to have reactivations for the last 20 years...
Actually no, the advice didn't make sense to me at all, and I believe most people with LC will start exercising more despite warnings. The problems is that I couldn't walk/stand or do much at all in the first 5 yrs of illness. I didn't need anyone suggesting or telling me how to move...
to add . . .
As well meaning as some physiotherapist are, they do not have the medical back ground or experise on how to 'treat' PVFS or post infectious states.
@Barry
The ME doctor I saw advised me to do nothing. I don't think that's too difficult to understand? Go for a walk and see how you feel after?
Most patients will do what they want anyways until they hit a block?
I didn't do anything during PVFS. I went out for short 5-10 minute walks at my own pace after the 5 year mark when I felt well enough to see how I would manage. It took at least one year after that to start increasing slowly to 30 minutes w/o feeling bad the next day.
I didn't need...
It's possible that people with certain medical conditions need to find the right balance between sodium and water intake, this includes electrolytes. Diabetes insipidus for example. I don't know what hormonal imbalances I have, but a higher sodium intake improves my overall being.
Sodium triggers your thirst mechanism and helps to reduce fluid losses from the urine- sodium helps to keep you hydrated. Adding sodium in your diet/drinks aids in the hydration process.
This is not POTS related as Trish mentioned.
I can stay upright longer when I drink electrolytes.
This pathway sheds light on microbial ecology in extreme environments and offers clues to early life on Earth.
https://www.nature.com/articles/d41586-021-00977-1?utm_source=twitter&utm_medium=social&utm_content=organic&utm_campaign=NGMT_USG_JC01_GL_Nature
@TigerLilea
I'm sorry to hear you're not feeling too well. My sister has Hashimoto, and felt fine after her first dose of AZ vaccine.
It appears that symptoms are mixed for everyone across the board.
The J&J vaccines are arriving in Canada this week. This is the one I want, but...
I don't want to be associated with any paper that uses PG as a reference.
"This stuff is real. People are ill. Doctors need to stop diagnosing this as anxiety. We have messed up before, lets’ not do it again with long term covid-19 illness.
Paul Garner, Professor at the Liverpool School of...
There's a group of Canadian software engineers that have set up a Twitter account "Vaccine Hunters" guiding Canadians on where they can book appointments and find walk-in clinics. It appears that many seniors don't want the AZ vaccine, so many are waiting for PZ or Moderna. So now anyone...
Herpes zoster following BNT162b2 mRNA Covid-19 vaccination in patients with autoimmune inflammatory rheumatic diseases: a case series
https://academic.oup.com/rheumatology/advance-article/doi/10.1093/rheumatology/keab345/6225015
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